We took Makenzie to Eye Plastics last Thursday. The Plastic Surgeon wants to try something before we rush into surgery. this is regarding the implant...
Toni, My daughter goes to Legrand and assoc. They are very good. We see Joe Legrand. I was told the same thing about the $. Our daughter Sarah has a ...
Toni, Also when Sarah had her first prosthesis made, Joe did it all the same day. We had to kill 3 or 4 hours inbetween appt., but he fit us in the same day....
Tammy, just a note, the pocket they'll be allowing between the prosthetic eye and the tissue might very well be a pocket for the gunk to collect. Also, the...
Like Colleen, I am not trying to upset you, but think you should also know that Leah had some separation inside her tissue near her implant as well, even...
Billy & Angela Van Be...
vanbmail@...
May 4, 2005 3:19 am
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Kim, Thanks for the great information. As well as everybody else. How do we go about getting secondary insurance? That would be such a help. I didn't even ...
Thank you both for your info. At least we don't walk in there now oblivious to the situation! The plastic surgeon did say it was a long shot ... so we are...
Hi Toni~ I'm wayyyyyy behind in reading my emails but I caught one of yours that said you are in PA. We are too--but in Pittsburgh. We see the Shields in...
Has anyones child had or has nystagmus? We are going to the opthamologist on wed to check Sarah for nystagmus. She has bilat Rb Leye enucleated. Sarah's eye...
Hi Kim, Abby's eye darts back and forth, especially when she is trying to see things. She is biRb with Leye enucleated and only a portion of peripheral ...
Hi Toni, I am responding about your question about the insurance and the ocularist. I talked with Pam Bergsma and she was trying to contact you. She tried to...
Toni, You need to contact the children's assistance office is pa. The central number is (717) 772-7702 . We had a local assistance office in our town, I ...
Maureen and Tammy~ WOW when we had BC/BS it only covered $500 of the $1800 prosthetic bill. You are lucky! ~ Mary B. ~ ... Do you Yahoo!? Yahoo! Mail - Find...
Stephanie/Kim~ I remember asking the Dr. what the black dots were also--they were stitches. ~ Mary B. ~ ... Do you Yahoo!? Yahoo! Mail - Helps protect you...
Liz and Stacey~ Do you know I had these same feelings?! I've never talked about it with anyone though. When Lindsey was to get her prosthesis after 6...
Liz, Sarah's appt. was yesterday. The opthamologist dialated her eye and checked for optic nerve damage. Sarah had plaque radiation back in Dec.of 2004 He...
Hi Kim, Leah has had glasses since 7 months -- mostly to protect the good eye but they also have a slight prescription for a stigmatism. She was not very good...
Billy & Angela Van Be...
vanbmail@...
May 13, 2005 5:16 am
4491
Hi there! I just needed a place to vent. . . last week Leah was supposed to go in for her 6-mo. MRI on Friday. We went and after her IV was done, they ...
Billy & Angela Van Be...
vanbmail@...
May 13, 2005 5:34 am
4492
I just wanted to post that we treated the glasses, like the seatbelt in a car. And I want to say that Anthony was 17 months old when diagnosed. We told him...
Michelle Amabile
chelleami@...
May 13, 2005 6:26 pm
4493
Dear Angela, I can hear your frustration!!! I'm sorry you had to go through that. I just wanted to let you know, you may know this already, they can just test...
Thanks for the understanding. We have tested just her blood before enucleation and then blood and tumor on a separate occasion. Neither test yielded a...
Billy & Angela Van Be...
vanbmail@...
May 15, 2005 3:34 am
4495
Hello all, Just wanted to let you know I'm back home after my 16day, 290km walk along the River Thames to raise money for Rati. The walk got loads of media...
Thanks, Michelle, for the good ideas. We are getting Brynn's glasses today, and I'm so nervous about getting her to wear them because she wouldn't even try...
Last week, we went to Brynn's ocularist. He said it's possible that Brynn will need a new mold soon. Her tissues were a little redder than usual because the...
Hi Abby! Welcome back! What a terrific report. Well done! I'm SO very glad that the doctor has agreed to another headache treatment!!! I will pray that ...
Hi Stacey, That's great news about Brynn's eye still being clear! Sorry to hear of the trouble with the prosthesis. Sounds like the current shape is causing...
Stacey, I would definatley have the new prosthesis made. Have you looked for an ocularist closer to home? I'm sure you could get a good recomendation from...
What great advice about getting kids to wear glasses. My daughter is addicted to Shrek, Shark Tale, and The Incredibles. Any time she watches her movies,...
