Hi everyone. I know this might have nothing to do with Gabi's RB, but I thought I would ask and see if anyone else has come across these problems, and ask for...
My son who was diagnosed w/bilateral RB @ 9 months was sleeping through the night until he started his chemo, he did not have an enucleation. He went through...
. That's very common. Zaky was a couple month shy of 4 when he had his eye out, so we didnt' have that issue. But both kids went through a phase like that at...
She's been through something tramatic, so I would imagine that right now she just needs security that in time will fade. I would let her sleep with you for a...
Dear all, thanks to those of you who have been asking for an update from Toronto. Rati's family are maintaining a hugely positive attitude, surrounding her...
After catching up on my emails from this last week I'm so excited I can hardly contain myself. The kids and I just got back from a magical week in Maine....
I'm forwarding any replies I get about the interest for the camp to have an RB week to my contact at the camp, so if you're interested, please reply to my...
Hi Colleen. Please let me know if camp sunshine does an RB week. My son is now 6 and lost his left eye to RB. He is just now starting to ask a lot of...
that sounds so cool!!! thanks for the info Dana ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best...
Hi Colleen, It sounds quite nice and I can't imagine having all meals prepared. What a luxury! I think it would be nice for our son to know that he is not the...
Whether the cancer is gone or not, he still faced a life threatening disease and as parents you went through a nightmare, we were eligible for the Oncology...
This sounds like a great time for all involved. I would be interested in information about it if they have an RB week. Thank you. Julia R. Callaghan ...
I will give notice as soon as I find out anything. For those that cannot afford the transportation to get there, they will be giving me contacts and I will be...
These are some great points, I'll definitely forward your email and comments. I know they do specialty weeks, so I know they know how to add additional...
Hi All! I had posted last week sometime about my daughter not sleeping after her surgery, and asking for any advice. Thanks for all those that responded. We...
Hi Kristen, My daughter, Jillian was diagnosed with bilateral RB at 22 months and had her right eye enucleated. We found out we were expecting our second child...
Colleen, I have heard camp sunshine is a great place. I live here in Maine actually not to far from where Camp Sunshine is, and where my children go to school...
Michelle Amabile
chelleami@...
Jul 12, 2006 12:02 pm
5754
Well, how small a world it is!! Well, if your kids have ever donated, it looks like you'll be a family to find out why and what it's all about!! I'll keep it...
Kelli, you may be sorry you asked for what you did, hahahaha, here's what you asked: Maybe we can learn from your experiences Colleen - I know that it would...
I would call your ped. Opthomologist and tell them what you’re trying to do and ask them for a list of all of the other opthos in the state, get phone #’s...
After you’ve gotten an EIN # from the IRS and are known as a 501C-3 organization, meaning people can write off their donations to you on their taxes, then I...
Well, I was able to fit my stuff into 2 parts, didn't need 5 parts, the email !! Whoo hoo! Hope my comments helped, I only can tell you what I know from...
Okay, after speaking with Ann earlier today, I have some thoughts to share regarding state groups and a national rb society. I don't think that a national...
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are suffering...
We went to Camp Sunshine several years ago, when Megan was just finished chemo. We had a great time but there was no one there with rb. She would love to...
