Thanks all. Sorry I didn't get to build the page I linked to - the connection I was using wasn't fast enough to handle the site building application, so that...
Hello all, So this is a quick email to say hello as Brenda, Samson and I wizz through a net cafe with our wonderful right-hand man of the day, Rom, who has...
The words that come to mind: AWESOME! AMAZING! I am so deeply touched by what you are doing, Abby. You are just so unbelievably amazing!!! One woman can...
Oh my your journey has been so interesting to follow. What dedication, How you have turned your RB into helping others, is what life is all about. Now as a new...
... too,will ... Hi Folks! We are on your side in a lot of prayers and hope that all will going to be ok! I knew about the chemos and the only thing you must...
Hi all: Here is a link to a promising new avenue of treatment developed by researchers at St. Jude's. It works very well in mice and does away with systemic...
Just wanted to say thanks for everyones concerns. I have been receiving email, showing concern for Nicole, How nice of everyone sending good wishes, I guess...
Wow, I just read the article. That's awesome. There was also an article last week on yahoo about a researcher in south korea who has been injecting mice with...
Here's a link to an article on RB in today's mail. http://www.dailymail.co.uk/pages/live/articles/health/ womenfamily.html?in_article_id=416297&in_page_id=1799...
Hi Friends! Sometimes u just cant predict what ur gonna find in ur mail! Just opened my mail n guess what? voip ! Have fun Guys, i think am gonna love it...
... hello jesse, my name is kelly and i am the mother of 7 month old charlotte who was diagnosed with retinoblastoma almost two months ago. she is so far ...
hello everyone, as you can tell i am new here and would like to talk with anyone with expirience with RB. on oct 7th 2006 my then 6 month old daughter...
... with ... with ... became ... well ... in ... her ... other ... i ... has ... with ... other ... and ... left ... whether ... PA ... (and ... next ... ...
Hi Kelly, My sorrow is with you! We, this group, understands your pain! Your field of work at least helps you understand the lingo. There are many who do...
Kelly, My name is Christy. My son Zachary was diagnosised with Bilat. RB at 3 months old. I knew something was wrong with his eyes, but just chalked it up...
Hi Kelly - Welcome to this group. It has been an amazing support for me and my family on our journey to understanding and dealing with Rb. Please post often...
Kelly, my name is Dana and we adopted a baby that was dx'd at birth with RB, she had 6mo of chemo and has had numerous laser and cryo treatments. They said if...
... it is absolutely awesome that i got so many responses so quickly thank you very much for writing. i truely hope all is well with jodi also. these little...
... great to hear from you. yes my baby charlotte does recieve tx on chicago --university of IL in chicago. did your little one have any treatment there?...
UPDATE ON BRANDON HE HAS BEEN OUT OF CHEMO NOW FOR 1 YEAR AND SO FAR SO GOOD. NO NEW TUMORS AS OF YET SO LETS KEEP OUR FINGERS CROSSED. BRIAN BI LAT. RB DX AT...
Hi Kelly-- I'm really sorry you're going through this. I'm glad you found this group, reaching out, and I hope we can help. My niece Joli was diagnosed at age...
Hi Kelly, I just wanted to let you know that I’m thinking of you and your family. Thanks for sharing your story. Those of us here know the tale all too...
Kelly, I of course think that St Judes is pretty awesome, yes it is far for you but they also provide transportation but if your child has already started...
Kelly, it sounds like you guys have been though a lot in the last couple of months. This is a great site to be on, we all share similar stories about our...
Hello Rb Family, Just a quick note to let you know that Abby has returned home safely from Kenya. She has much to tell; unfortunately, her computer needs...
To a conventional physician, the tumor is the enemy. Cancer is viewed as a local disease, namely the tumor. By cutting out the tumor, irradiating it, or...
As a Retired nurse, I am surprised that this type of posting was allowed here on this very fragile web site. With Mothers doing the best they can to deal with...
... Dee, i think you are right. i read the message and just think i never really got the point....it never actually stated a treatment or any kind of way of...
