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MS-Quads · People with advanced multiple sclerosis

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Description


MS-Quads is a place that people with advanced Multiple Sclerosis can share their experiences with all aspects of life. Possible topics to discuss include feelings, independence verses autonomy in one's life, assistive devices, personal care attendants, dealing with specific physical problems, relationships, family, accessibility and disability related legislation -- in short, any part of your life that is affected by MS.

Most organizations for people with Multiple Sclerosis seem to focus on people who are newly diagnosed or have relatively mild symptoms. They usually leave me feeling left out, even unwanted. Information they provide on symptom management, medications, drug trials one can't qualify for unless you can walk are useless to people with very advanced multiple sclerosis. People with MS who balance four kids, full time jobs, volunteer work and more are not inspiring. Internet based web sites and forums and lists for the most part display this same bias.

MS-Quads provides an alternative -- a place where people with MS can share their lives, challenges, and know they are among others like themselves who understand.

MS-Quads is open only to people with advanced Multiple Sclerosis, spouses and significant others.

While it is impossible to guarantee confidentiality on the Internet, I would encourage everyone to respect others and not share what is posted here without first asking permission from whoever posted it.

This unique place was the brain child and created by Adrienne. Thank you Adri!

Kimberly, List Owner

Message History

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2008 428 463 562 476 387 483 421 388 464 198
2007 533 417 447 401 416 385 241 348 299 331 244 349
2006 1139 1328 1319 1027 836 961 1426 978 707 673 536 577
2005 947 687 1024 708 590 807 705 923 1178 887 1134 1064
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2003 1458 1519 1483 1324 1545 1285 1047 1535 1381 1647 1862 1498
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2001 578 541 370 409 255 218 523 240 1004 437 824 703
2000 1 292 323 191 188
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