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Name Creator
description of Friedreich's Ataxia
accurate but technical and medical description of Friedreich's Ataxia
http://www.geneclinics.org/profiles/friedreich/details.html
lisawhy2000
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Ataxia Telangiectasia
an email list for info on AT
http://groups.yahoo.com/group/Ataxia_Telangiectasia/
trinjoy
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Diana Michelle's Home Page
The Internet's One-stop Resource for Parents with Disabilities
http://ourworld.compuserve.com/homepages/Trish_and_John/
trinanddave@...
Send Message
Disabled Parenting Today
http://www.sp-dpt.com/
trinanddave@...
Send Message
Friedreich's Ataxia Parent's Group
for parents whose kids have ataxia
http://www.fortnet.org/fapg/
trinjoy
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INTERNAF
NTERNAF is an international e-mail based forum to exchange information and support for those who are diagnosed with Ataxia, their families and friends as well as anyone who has an interest in these disorders.
http://internaf.org
macmike_1998
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Idebenone -What is it?
Idebenone= CoQ-10 plus more soluble agents is described plus dosages
http://http://pages.infinit.net/macmike/internaf/archives/what_is_it.htm
lisawhy2000
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Idebenone website
Listing a researched description of Friedreich's Ataxia patients
http://www.idebenone.org/
lisawhy2000
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Through the Looking Glass (TLG)
organization that helps parent who have disabilities with resources
http://www.lookingglass.org/
trinanddave@...
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descriptions and a place for ordering books on disabled childraising as well as for baby care adaptions for the disabled
http://lookingglass.org/publications/pubdetails.php#ABCE
lisawhy2000
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my petition
petition for disabled parents
http://www.petitiononline.com/disparen/petition.html
charms4u_1999
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my story never seems to end
A site for the assistance of myself and other disabled parents
http://wethedisabledparents.5er.com
charms4u_1999
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parenting tips etc.
http://family.go.com/Categories/Parenting/
lisawhy2000
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parents with disabilities online
http://www.disabledparents.net/
trinanddave@...
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