Hi, I stumbled upon this group / board a few months ago in my search for DS info. At that time, I started by posting a question / worry and got such a...
Thanks, CB -- it's always good to hear another adult's perspective. Like you, I didn't want to consider surgery as an adult. My head turn crept up on me in my...
Hey everyone. i am so happy to find a group for people with duane syndrome. I have type 1 duane syndrome. my left eye does not move left. I am curious to hear...
I thought i was weird for wanting all the "action" to be on my good side. But it is really nice to hear that others do this too, and that it is not a weakness...
I haven't read all the archive posts from adults or older kids who have Duane's, but some say that their Duane's does not bother them or no one notices etc.. I...
Hi...I joined the group a little under a month ago and I am amazed at all I have learned through these postings. My son (almost 2) was diagnosed with type 1...
When i was a child my parents decided to treat me as if i wasnt different or that it wasnt weird or that DS was a hinderance, and now at 20, i love duane...
Hi Julie, I am also new to the group. My 16 month old son, Riley, has been diagnosed with Duane's. Initially, I too was concerned about what the future...
So people did act 'disgusted' by your duanes? Was it that noticable to them? I don't want anyone to be disgusted by my dd's duane's. insomniacnimrod...
The posts have been very informative & reassuring to me. Thank you all for your help and sharing. I will continue to read & educate myself in order to raise...
Julie wrote : " Does no one really notice your eye, did no one ever tease you? I just find it hard to believe. My worst fear is that she won't be able to do...
My little girl was born 3/3/2000. Around 6 months I thought there was something wrong with how she looked at me & especially in pictures. I mentioned it to her...
Dear Julie! I can contribute what I observed with our daughter Simone 4y Type 1 left. (no head turn). At the age of 8 mo when DS was diagnosed we were ...
Does Duane's Syndrome cause any of you to experience motion sickness? My child had a LOT of trouble with projectile vomiting on any trip (IE even just to the...
For what it's worth, our son w/ Duane's, now almost five-years-old, has never had any problems w/ motion sickness. - Wendi in Massachusetts ... From:...
If your daughter's eyes are aligned in the straght-ahead position, she will most likely be fine. She will look normal when she is looking straight ahead and...
My worst fear is that my child will be killed as a teen in an accident b/c she won't be able to see a car coming from her left side. I realise this is a long...
My child (born 3/3/2000) does not talk about it. She does mention from time to time that she does not like her left side & that "everyone has a not so good...
I have always been prone to motion sickness. Never thought it was related to Duane's. If it's related to Duane's, then closing one (or both) eyes may help. I...
I have been driving for 25 years and the only real problem I have is judging distances when parking. I scratch my cars a lot, but only when parking. Your...
... A lot of children suffer from motion sickness, completley unrelated to Duanes. Me, having Duanes, I had the same problem as a child but my two sisters had...
... It is more likely that your daughter will look even more carefull at her "ill side" before crossing a street. ... I have to drive more carefully because I...
My 5.5 month old son is teething and the little guy naturally would like to chew on his thumb for a bit of relief. I'm not sure if it's the Duane's or just his...
my 8 month old has never sucked her thumb. now that i read this, perhaps it did have something to do with her perception when aiming her thumb towards her...
Hi, First off, thanks to everyone for their candid discussions and informative posts! I have been "lurking" here for the past month or so, and have finally...
Geez, Carrie - are you in WV? Sounds just like the dicussions I had with our Dr. Tarajaki. AFter dropping the "there is nothing you can do, nothing will make...
Carrie, My daughter has Duanes, T1, Left eye. Her eyes were aligned in the straight ahead position until she was about 2 1/2, she is now almost 4. She...
I feel your pain. My pediatrician kept putting my concerns off until finally at my son Bobby's 15 month appointment I demanded a referral to a pediatric eye...
No, we're in FL, but it sounds like the same old story. Apparently these particular doctors (the POs) are few and far between and leave a lot to be desired in...
