Thanks so much for the reply! Happy New Year! -Shawn ... Center. She just turned 10 months. Dr. Rosenbaum had recommended surgery and she was scheduled for...
Hello everyone, I just joined your network because I'm desperately looking for help. While reading through your messages, I was surprised to find that so many...
Hello everyone, I just joined your network because I'm desperately looking for help. While reading through your messages, I was surprised to find that so many...
who cares what anybody thinks im 22 and i have had duanes syndrome since i was born and i wasnt ridiculed for having it surgery at that young of age is...
Your experience may differ from that of many others. Our decision to proceed with surgery was based on several medical opinions and what was best for our...
Just wanted to share my experiences. Both I and my older son have bilateral Duane's. For myself, my left eye doesn't quite hit midline and my right eye goes...
... his duane's. He is 22 and had surgery last May as the Duanes eye was causing him a lot of problems - not just cosmetically though. He started having...
... this, or could be that it is related to a certain type of condition he sees that this would benefit. My son had surgery on just the one eye last May. It...
My son is 10 months and has Type 1 left eye. He is having surgery on January 24 in Rochester, NY. Can anyone tell me about the recovery process and/or what...
My son was two when he has his surgery. He woke up very angry about the IV from surgery. It took most of the day for him to come around a little. He also...
Hi ???, I'm very sorry to hear that you are experiencing so much troubles with your condition. Unfortunately, I cannot help you with your medical issues, but I...
I was wondering if anyone can let me know if their childs (or there own) case of Duanes syndrome, got a lot worse in time. My 8mth old daughter was dig. with,...
When my daughter was diagnosed with Duanes at 16 months (type 1, right eye), our doctor told us that it does not get worse although the medial rectus (muscle...
I hope all goes well with your son's surgery. Is he having the VRT? Since he is so young, he won't remember any of it... you will. Our little girl was older (5...
On Tue, 09 Jan 2007 23:17:55 -0000 "laineyseye" <jklein143@...> ... Mine definitively did. After patching and surgery in early childhood my eyes did hit...
I understand it is quite rare, but my son had a fever convulsion at almost two years of age. We went from an almost 10 degree head turn before the convulsion...
Hello Erica, thanks so much for all the support! :-) At this point I am convinced that you and everyone else is right, I have to really work on accepting...
Are this surgeries covered by insurance? and if not how much does it cost? I have a 1 yr. old and was just diagnosed with DS a month ago and just had an MRI....
... Don't know, I am from Germany. ... A while ago someone mentioned US$ 6400. ... Definitely. During the first three years in life the brain develops ...
I think for the most part the surgery is covered by the insurance. That is assuming you don't belong to an HMO. We had a copay. Also if you are traveling for...
My daughter was diagnosed with Duane Syndrome about 6 years ago. She cannot move her right eye outward. She can look straight and left but not outward. I...
First, Paxil is not the issue. I never took it and my son has it. The reasons are unknown for the sporadic cases which it sounds like you are, but it can run...
Thanks for the info. I think she will be fine, she does all the normal kid stuff. I just want to be prepared with the info just in case. Thank you very...
its been a long time but I just wanted to know has anyone all most forgot there child has duanes as they get older we only go to the eye doctor once a year my...
My daughter is only 18 months old but a friend of mine has a daughter with it. She is 18 and in college (straight A student). She plays on her college...
Dear Tina, I am right there with you!! I feel very fortunate for this group and the wealth of knowledge that the early members obtained and posted for all of...
Our daughter is 18 months. Dr. Rosenbaum said he could perform surgery, but wanted her to wear glasses first. She will not wear glasses and in actuality, her...
