Hi Julie, it must be such a worry as we all worry so much when its our children who could be hurt etc. I can only speak about myself having DS type 3, I also...
Has anyone had experience with Dr. Buckley at Duke and VRT surgery? Also, does anyone know if there is anything specific that would make someone a better...
Hi group, Thanks so much to those of you who wrote to me about my essay. I almost had it published at Jane magazine a year ago, but it eventually got...
Just got my BS and i wasnt even required to turn up! Just called these people 1-801 697 0461, filled out a few forms and a bit of paperwork and was...
chani-kopnicky277@...
Feb 7, 2007 1:23 pm
10516
Laura, I think everyone appreciated your essay and everyone has handled duane's differently and has different degrees and you have your own take which is...
well ive been busy the last few weeks moving into my brand new house...i never thought i would get such a good deal until i found http://myownwaynow.info/uhbx...
chani-kopnicky277@...
Feb 7, 2007 4:49 pm
10518
What does this have to do with Duane's? If I wanted info about moving into brand new houses, I'd join a "moving into brand-new houses" group. If I wanted to...
... Our 10 month old had VRT surgery last month and even though her outward movement isn't as great as we had hoped I don't regret having the surgery. I think...
My son had the MRR surgery with a y-split of the lateral rectus muscle at age 4. We do have some regrets. When doing the Y-split, the doctor cut into the...
My son who is now three had VRT in Dec 2005 followed by MRR in June 2006 by Dr Rosenbaum. I have no regrets! I think sometimes parents have to make a...
Hi there, Our daughter had VRT at 18 months with a follow up MRR (to further correct the head tilt) at 2 1/2 years old....we have no regrets! I actually feel ...
My daughter had VRT surgery at 10 months also. We've had a longer, more difficult route than I anticipated, with amblyopia, patching, and two follow-up...
A GOOD INFORMATION ABOUT BREAST CANCER http://breast-cancer1.blogspot.com ... We won't tell. Get more on shows you hate to love (and love to hate): Yahoo! TV's...
Hey everyone, my name is Alan, I am 28 years old and just found out I have Duane this past week. I've been to many PO's, and I was always told that it was just...
... self confidence and cause anxiety and depression. It also causes headturn, which can cause back problems. There is also a chance that it affects the...
I have been lurking for a while, enjoying the stories of adults with Duane's -- thanks for sharing! -- and the welcoming of parents with newly-diagnosed kids....
SariScribe@...
Feb 26, 2007 5:02 am
10534
you can now officially call me Dr. :) Took me about 2 months, but after calling these guys 1 801-697-0461 they helped get me setup and get fully ...
alexis-sabry709@...
Feb 27, 2007 12:48 pm
10535
I was wondering if anyone had surgery to correct the head turn and regretted it? I am a 46 year old female who was only diagnosed several years ago. I was...
Hi Becky. My daughter had the surgery for Type 1 in her left eye when she was 19 months old and although it was a tough decision, my husband and I don't...
I am considering surgery for my daughter who is almost 3. She has type I Duane's Syndrome in her left eye with 20 degree face turn. Has anybody had success...
My son Alex has had two surgeries with Dr Rosenbaum one at 2 1/2 and one at 3. He is now almost four. After the initial two months, he has been stable with...
Hi everybody. I have type I DR. My name is Tom and I've had DR since birth of course and have not been treated. I came across this site recently because...
Hi everybody. I've had DR all of my life through adulthood and I think one of the most important considerations for surgery is ease of reading. As a post...
Hi Tom, My name is Tina and I also have Duane syndrome I & II along with wildervanck and Kleppil-Feil syndrome which these two are very rare and I am 36 yrs...
Hi Tina. Thanks for your email. I'm interested to know what your Dr.'s opinions are with regards to surgery. In some cases, as I've read, the surgery is to...
