Hello - this is our first time on this board and were wondering if anyone can shed some light on this topic. Our 15 month old twin daughter has been diagnosed...
Hi Sue, Welcome to the group. I am only new to, so I can only speak from my own experience. I am 50 and had been told as a child and teenager that my eyes...
ADDITION: Has anyone had surgery done resulting in improved outward movement of the eye? Note: forwarded message attached. ... Ahhh...imagining that...
iam 18 and i live in chicago, ive basically lived a lie, duane's syndrome makes my life hell, i hate it, i was wondering how people coped , or lived with it?...
Hi there, It's good that you came to this site. There is a lot of information about living with Duane's in the archives. I am sorry that your life is hell....
Hi there Angie, Welcome. i was researching as well. I am 50 and only recently was diagnosed with DS 1. It is really annoying at times with double vision ...
My son has Duane's, so I thought I might recommend a good doctor. We live in Alabama, but see Dr Rosenbaum at UCLA in Los Angeles. He has probably seen and...
There are surgeries that can help with Duane's syndrome that can make it much better. You need to see a good Pediatric Opthalmologist (PO) -- even though...
Background: Bupivacaine injected into animal muscles induces a cycle of myotoxicity, degeneration, regeneration and hypertrophy of muscle fibres, without...
Hi Im in the UK and been to see Dr Rosenbaum. My main question isif I decide to go ahead with surgery wether there would be extra costs if something went wrong...
Hi everyone it's a lon time since i was on this site so thought i'd see what was going on and ask some advice over my son who has type 3 duane's. He is due to...
I can't really answer your question, but I'd be interested to know more about the procedure. How will this procedure change the movement of your eye? TJ ... ...
... Hi, My son experienced similar problems to you. He had surgery called mmr surgery last year when he was 21 years old. Cosmetically it looks so much...
I think that this is a good question to ask. Who is doing your surgery -- Dr. Rosenbaum or someone else? I have never heard of EXACTLY the surgery that you...
The usual surgeries are for Type I or II. I think that there may not be surgery available for Type III, but it is certainly worth asking about. Can your son...
I forget who posted that their Duane's was getting much worse at they got older, but that is what happened to me. I maintained good central alignment until my...
Hi, My daughter Iris had VRT and the lateral rectus detached from the eye and sewed to the bone at the same surgery. She had type I and very severe retraction....
Liane, After going through the surgery with your son, why wouldn't you consider the surgery for yourself? Just wondering as I still wonder whether I should...
Hi, Everyone, It's been a while since I last posted. I came on board last summer, and probably haven't posted since then (although I visit often). I have a 17...
I have a 15 month old son with Type 1. I'm so happy that we found this group, it helps alot. My son is not walking yet-- has anyone else had a problem with...
Hi Suzanne, My son has type III in one eye and he has had the MRR surgery. It wasn't a fix for his Duane's - his eye doesn't have more ability to move to the...
Got in a muddle trying to reply not sure if there on the messageboard or not. This is the operation I am referring to with Dr Rosenbaum. Surgical management of...
My 13 month old has just started walking but she is still crawling a little bit too. She has Type 1. I'm not a doctor but I wouldn't think his not walking...
Hi Barbara, My son also has Duanes type III in one eye. He will be having surgery soon. How old was your son when he had his surgery and did they operate on...
Hi Liane, Thanks for posting the information. My doctor decided not to provide bi-focals, as she felt this would make the focusing worse. My new glass help a...
Yes, the retraction was gone. The both operations were 3 years ago when she was six. She is much better than before but she still has a slight headturn and...
... Hi Allison, He was five years old when he got surgery. They looked at the muscles on both sides but ended up operating only on the "good" eye because that...
