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duanes · Duane's Retraction Syndrome
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Messages 10993 - 11028 of 12034   Oldest  |  < Older  |  Newer >  |  Newest
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10993
My mum is 80 years old. Within the last one year or so, she suddenly developed a rapidly progressing retraction in her left eye. The eye is nearly closed up...
Prosper
avis_cantatis1
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Sep 1, 2007
4:00 pm
10994
Did she have Duane's before. Duane's is a congenital abnormality, so it cannot be late onset. However, if it was mild, it may never have been caught. I did...
Candice Forbes
auburnaxo93
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Sep 1, 2007
5:11 pm
10996
... was ... and ... I ... Hi Fiona, I don`t post very often!, sorry for the late reply. I have type one and have had surgery when very small. I live in the uk...
evaneliza
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Sep 2, 2007
9:03 am
10997
Fiona where in the UK are you?? which hopsital is dealing with Seans eye condition Shelley ... From: "evaneliza" <evaneliza@...> To:...
petshell
petshells
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Sep 2, 2007
9:12 am
10999
Hi, I currently live in the UK and at the age of 23 started to notice that my right eye has what i believe to be Type 1 Duane syndrome. I did know i had it all...
hothotlad2003
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Sep 2, 2007
7:05 pm
11000
Hello, our 1 1/2 year old twin daughter, Jessica, has Duanes in her left eye as well (Type 1 - does not turn outward). But as far as we can tell, she can see,...
Sue Muff
sue_diplacido
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Sep 3, 2007
3:36 am
11001
... that ... Most ... condition. ... i ... some ... If you are not having problems with your vision I would be inclined to leave your eyes alone. May be worth...
victoriagrimshaw
victoriagrim...
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Sep 3, 2007
8:46 am
11002
Hi, Thanks for the reply, there is slight head tilt ti the right in my case so you could say there is slight mis-alingment of the eyes. When you say Duanes...
hothotlad2003
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Sep 3, 2007
12:39 pm
11003
Hi Annie, Please are you able to tell me the positice effects form the surgery as you mentioned no-one else noticed it previously unless you told them about...
hothotlad2003
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Sep 3, 2007
12:44 pm
11004
From everything I read, loss of eyesight can happen and should be watched for, but is not a given. My son also has Duane's and has perfect eyesight. My...
Candice Forbes
auburnaxo93
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Sep 3, 2007
4:59 pm
11006
Hi, I just joined this group, because I think I may have some similar symptoms but am new to all of this. I am 21 years old, and have always had problems with...
sanderschicken2000
sanderschick...
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Sep 3, 2007
11:31 pm
11007
Rupesh, As for the surgery, I am not familiar with VRT as I am with MRR because that's what I had at age 21. i had pretty good alignment, with a slight head ...
Annie Fitzgerald
fitziegirl730
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Sep 3, 2007
11:50 pm
11008
Hi Annie, Thanks for the reply. What i need to know also is did the surgery improve your abduction and ability to move your eye towards your ear in the DS eye,...
hothotlad2003
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Sep 4, 2007
8:40 am
11009
Hi Patricia, You mentioned that you live in the Southeast - pretty big region. If you happen to be near the Carolina's you might consider Dr. Edward Buckley at...
winkabob
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Sep 4, 2007
8:54 pm
11010
Hello, I had posted earlier about my son being diagnosed with Duanes. I called his doctor back to find out which type that he has, the doctor says it's type 2...
Christina
preciousnfew27
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Sep 4, 2007
9:15 pm
11011
i have a 2 yr old son named hunter he was diagnosed with 1st brown syndrome when he was 8 1/2 months old ( which is a chin elevation and head turn) this may we...
taterbug
angeleyes42o...
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Sep 4, 2007
9:43 pm
11013
My daughter Kayla was diagnosed with DS as an infant. I believe her 9 month old brother, Jack has the same thing. Kayla doesn't have any head turn or double...
lclarsen2000
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Sep 5, 2007
9:06 pm
11014
3 out of 4 with it and 1 who carries the gene. Shelley ... From: "lclarsen2000" <LCLarsen2000@...> To: <duanes@yahoogroups.com> Sent: Wednesday,...
petshell
petshells
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Sep 5, 2007
9:13 pm
11015
It's not so surprising to have more than one child with Duane's, if one of the parents has it. According to what I've read here (though I haven't followed...
SariScribe@...
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Sep 5, 2007
11:11 pm
11016
You said that one of your kids is a carrier...how do you find that out? Did you have genetic testing? My 2 1/2 yr old has type 3 and my 4 month old does not...
murray allison
alli_murray
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Sep 6, 2007
11:24 am
11017
The family was part of a study by Great Ormond Street and other professionals. they picked this up when they did the study (i think this was a surprise for...
petshell
petshells
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Sep 6, 2007
3:22 pm
11018
Thanks Candice We have been worried that it could be something else. I can't remember even the slightest indication of this condition all her life and I have...
Prosper
avis_cantatis1
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Sep 6, 2007
3:49 pm
11019
Has anyone read or have any info about the possible association of the Duane Syndrome with Shingles? I understand that the syndrome is a congenital condition...
Prosper
avis_cantatis1
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Sep 6, 2007
3:53 pm
11020
... me from the UK, so I didnt have time to check the computer while they were here. I hope Dr. R. can help you, it also gives me hope that something can be...
jma1721
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Sep 6, 2007
4:39 pm
11021
there is also a condition called 6th nerve palsy that presents the same as Duanes ( i think) although this is not congenital and can happen in later life. if...
petshell
petshells
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Sep 6, 2007
4:43 pm
11022
I believe I was the one who wrote about using the straightedge when reading. That has helped me when going from paragraph to paragraph as indicated can be a...
tbrown9163@...
tbrown91632003
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Sep 6, 2007
8:54 pm
11024
... getting very tired, it is especially frustrating when there are deadlines to meet in college. I sympathise with you both and can understand what you are...
jma1721
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Sep 10, 2007
3:08 pm
11025
Hi there, My two year old son, Riley, is scheduled for surgery with Dr. Rosenbaum in January. Wanted to check in to see if anyone could provide me with some...
Kristie
kashannon94542
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Sep 10, 2007
6:26 pm
11027
Depending on what your needs/budget are of course, we found UCLA Guesthouse to be completely adequate for our visit with our 15 month old back in March. Sure...
c_tutera
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Sep 11, 2007
2:40 pm
11028
Thanks so much! I thought I had read there was a place on campus to stay, but wasn't sure. I appreciate the info! Kristie...
Kristie Shannon
kashannon94542
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Sep 11, 2007
7:29 pm
Messages 10993 - 11028 of 12034   Oldest  |  < Older  |  Newer >  |  Newest
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