Mr Lee Moorfield Eye Hospital London Where near London are you? We are in Essex Shelley ... From: duanes@yahoogroups.com [mailto:duanes@yahoogroups.com] On...
I have written that I now see a low vision specialist. Up until recently, I had only seen a Pediatric Ophthalmologist. I had no idea a low vision specialist...
My daughter is 2 1/2 (Duane's Type 1, left eye) and she also wears glasses. She had surgery last January after it was discovered that her eye turn was not...
Hi, Anderson! I'm bringing my daughter to UCLA for VRT next week. Will you be at the office on Monday? When will you be there? Will anyone else be around...
SariScribe@...
Jan 2, 2008 4:36 am
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Good Luck!! We are coming with our son for VRT January 16-18. I would love it if you could send any feedback. Any suggestions or tips! Kristie ... i> Hi,...
Actually the glasses that were prescribed are not prism. We have an appointment with another doctor at Children's Hospital in the next couple of months and we...
Hi Shelley, many thanks for your reply. We live in West Sussex so not too far from London. I have searched the internet and apart from Mr Lee at Moorfields...
Geri Years ago Mr Lee referred us back to the consultant in Colchester for MRT as it is an easy procedure which he felt the local consultant could do. The VRT...
Shelley I am very grateful to you for this most interesting information and I will definitely now proceed to make an appointment with Mr Lee. I will let you...
Hi I have Type 2 Duanes in my left eye - I am now 67 years of age and had three eye operations as a small child in the 1940's. Is it possible for the eye...
I was diagnosed with Duane Syndrome in 1989. I have surgery but it really didnt help and I was told that it was no cure. I was wondering if there were any...
You might try searching the posts on Duke University. I understand there is a physician there who studied under Rosenbam at UCLA and a doctor who has Duane's...
Thanks a lot, I definitely will and will keep everyone update! Jeanette McCray ... From: Candice Forbes <candiforbes@...> To: duanes@yahoogroups.com ...
I've been looking through old posts, as my daughter is scheduled for VRT on Tuesday (with Dr. Rosenbaum). If you look for posts about Whitney, you'll find...
SariScribe@...
Jan 7, 2008 9:21 am
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Hi, All. Today Dr. Rosenbaum performed Haia's VRT. He said that the surgery was successful but the inner muscle (Haia has type 1, left eye) is very tight and...
SariScribe@...
Jan 9, 2008 7:31 am
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I wish I could say something that would reassure you, but my daughter hasn't had surgery (yet ... although we have seen Dr R and he recommends it). Know that...
My son also went through some of the things that you were talking about. However, around 3am California time, things changed. He woke up from surgery in such...
Thanks, Candi, and thanks CTMartin (sorry, didn't catch your name). Candi, I'm relieved to hear that MRR was easier on your son than VRT. I really would...
SariScribe@...
Jan 9, 2008 7:14 pm
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Hi Sari, I know exactly how you feel. I was worried too! Honestly, we could not see much result after the 1st surgery (the muscle was tight too), but the...
Hi Sari Oh yes, we do understand - Tahlia also was very sleepy, nauseated and actually had a bleed under the eye after her VRT surgery. She threw up everywhere...
Sari, I don't know if this helps or not, but this is my 2 cents: Here's a previous email I sent to someone else in the group: "As for the surgery, I am not...
What great advice and encouragement. Thank you, Sue. Haia's post-op appointment was somewhat encouraging. Dr R checked for vertical deviation and said...
SariScribe@...
Jan 10, 2008 12:15 am
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Hi, Annie. Thanks for your input. It is so valuable to hear from someone who has gone through it herself (in addition to hearing from other parents). I'm...
SariScribe@...
Jan 10, 2008 12:22 am
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Dr Rosenbaum does the surgery on the Duane's eye. My son had it done. However, I have heard it mentioned and our doctor here said that it can be done on the...
Hi again Sari I hope that Haia is feeling better even with these few hours that have passed between our emails. That first post op visit is reassuring when the...
I have had this since I was born, never did any research on it, did a google on it one day and I am here. When I was younger my parents tried that treatment...
