Thank you so much for the lovely responses. These stories certainly made me feel better. When I was five I had VRT surgery to align my eye, which the doctor's...
Hi. i personally do not have Duanes Syndrome, but my little brother does. He has type one, and struggles with it almost everyday. I joined this group to try...
... in ... HEY!!! i know this is random and completly unassociated, but my husband is from Garden City!!! thats crazy... But the ENTs tried repetedly to help...
To be honest, most of my life I never realised I had something wrong with my eye. My vision has always been pretty good and I never noticed apart from the...
Hi everyone... I was wondering how many of this group can associate with the "syndrome" portion of Duane's? My daughter has the anomoly being the eye, however...
Hi there, I'm having botox in my eye on Monday, it is a practice run for the surgery. I live in the uk and I'm lucky that my consultant is a big fan of Mr Lee...
Hi everyone. I have Duane's type I and it has not been corrected in any way. I think that treatment of Duane's can be elusive because there are different...
I forgot to say that I was diagnosed with Duane's type 1 in my left eye. When I saw my opthomologist and he said doctors don't like to operate on it - and I...
Hi there Firstly let me tell you I am also in Australia so that might be of some comfort. I am not sure where you are in Australia but there is a very very...
Hi, Sari - regarding Haia's eye shape change. My daughter, Alana, took a long time before her eye looked like itself after VRT. If I remember correctly, I...
It has been a while since I've read any of the posts or sent any for that matter. Our home computer broke and I couldn't access my account from work. I'd like...
My daughter had Type I, 30 degree head turn... The initial VRT gave her substantial lateral movement and reduced her head turn greatly. The MRR gave even...
If you could email me the contact information, it would be greatly appreciated. I'd be more than willing to travel the distance for the surgery. Thankyou...
Good Luck with your botox injection Danielle, My son had a follow up appointment last monday after having botox end of November, unfortunately for him it...
One thing that is not often talked about is the "art" not just the science of VRT. I know our pediatric opthamologist at home tried VRT a couple of times and...
Thanks, Desiree! Sorry to hear that you had to go through back-to-back surgeries. I can imagine how difficult that must have been. Thanks for sharing your...
SariScribe@...
Feb 4, 2008 3:23 am
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Hi again I'm glad to know that there is a possibility of you travelling to see Tahlia's specialist. His name is: Dr Glen A Gole Wesley Medical Centre ...
Does anyone have experience with the VRT surgery with a child younger than 2 yrs old? My 17 month old daughter, Emma, has Type 1 Duanes in her left eye. She...
Our daughter's diagnosis was pretty much the same timeline and diagnosis as yours. Theirs is the most typical diagnosis - Type I, left eye, female and some...
They still give out those doctor bears -- my 11-year-old got one just last month! :-) I do kind of wish we'd done the surgery earlier, before she was so...
SariScribe@...
Feb 4, 2008 6:17 pm
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I'm confused. When we saw Rosenbaum 1 1/2 years ago about our dd he said she needed glasses right away and if she was a candidate for VRT that it would be...
We ran into the same thing. And the same type of qualifications on either end too. Here is what I understand: Before the age of five, the eyes have not been...
Hi Julie, It is a huge decision to make when considering surgery for your child. From what I have read on this board, most have heard and believe that going ...
I forgot to mention one other thing. Rosenbaum's group also caught that my son has a touch of Duane's in his good eye because it does not go to the extreme...
I would agree with everything Candi has listed. Our daughter had VRT at 18 moth's and a follow up MRR at almost 3. Besides the fact that that her surgery at 18...
The others have given you some great advice. One of the other factors that we considered before getting surgery for our then 1 yo daughter was that we didn't...
Our dd also had VRT surgery when she was very young--11 months actually. The hard parts: *She couldn't understand why we weren't feeding her or giving her ...
I have one additional question for all of you. How bad was yours/your child's duane's? See, our dd has a 10 degree headturn but her eyes are straight, no...
The purpose of VRT or MRR surgery is to align the eye's in the straight ahead position. The lateral movement often achieved with VRT is only a Perk and not the...
