Hi Tammy...I haven't been able to get on recently to reply to your comments. I am 22 years old with I would say 15*-30* headturn. My PO said it varies....
Here is a list of researchers that I have compiled over the years (below). If anyone has any additions to this list, please post. Kathy duanes@yahoogroups list...
I had the worst day at work yesterday. I was serving at a checkout (I work at a supermarket. it's good money!) and a little kid walked up with his grandmother....
How agonizing to feel taunted. I hope that you have no more incidents like that, and I hope the wait time for surgery goes quickly -- and that the surgery...
My dd Whitney had surgery at 10 months also. There are some before and after photos of her in the "Photos" section of the website. I wasn't concerned about...
hi, new to the group. i have been watching this sight for a couple weeks. our daughter (7yrs) has duanes. she also has other health issues nobody seems to be...
Her alignment was not quite right after the VRT surgery, so her brain chose to use one eye over the other and she began losing vision in the eye that she...
I have a seven year old daughter who also has Duanes. We went through a 9 month span last year, where she would have severe stomach problems (vomiting etc)...
I've had chicken pox and tonsillitis. Is it possible that it's Duanes related? I don't see how an eye condition could be related to a stomach ailment. ... ...
A stomach problem can be related to an eye problem, whenever your vision changes you may have nausea or dissiness. Thats why people who need stronger glasses...
Corey, What Type of Duane's do you have? Why do you have to wait so long on a waiting list for surgery? Is VRT an option for you? Is a visit to Dr. Rosenbaum...
thanks for your imput. this is driving me crazy. my daughter has type1 in her right eye. we've been to hershey med childrens hospital, childrens hospital of...
Bad hair isn't comparable to overweight/disabled people. It's self inflicted. I have type 1 in my left eye. I had binocular vision until I was 19. To be honest...
I'm one of the only members here who isn't a parent, knows what it's like and has been through it - so my sarcasm is well merited. The problem described isn't...
I apologise to Tam if I was rude. I'm twenty-one, I'm sarcastic 99.9% of the time. I hope you find the source of your daughter's problem. I'm sure the...
Hey Corey. I'm not Tam, but I appreciate the apology you just gave. Although most of the people who post (at least recently) are parents, some of us are adults...
Best of luck to you---thanks for the information. I looked at your daughter's pictures--her eye looks great... ... From: duanes@yahoogroups.com on behalf of...
Tammy EmailDear all I have entered my daughter into this competition! She does not have Duanes, her twin brother does, (although she does carry the Duanes...
I am 23 year old with Duane's Syndrome. I also get migraines, ever since I was little. I know my migraines are hereditary, but I feel that I am more prone to...
Also sometimes associated are hearing problems / deafness and I have also read of rare cases of internal organs being reversed ie on the wrong side of the...
I myself have Duanes 2 and am completely deaf in my left ear, the same side as the affected eye. I did not know about the possibility of organs in the body...
... BOR syndrome. Symptoms of this can include hearing loss to verying degress and deformed or missing kidneys (among other minor things). Her ENT doctor said...
Hi Pat Sorry I cannot tell you where I read this but read it around the time that Tahlia was diagnosed. As she and her twin had been born with small holes in...
Do anyone have the name or any information about the doctor that practiced with Dr. Rosenbaum? I am trying to locate him but have not been success so far. ...
Hi, My name is Elly Bosch, I live in the Netherlands. I have a 10 year old son, Matthias, who has duane syndrom type 3 in his left eye. He has had surgery at 8...
I've heard rumors on this board that our PO, Dr. Edward Buckley from Duke Eye Center, practiced with Dr. Rosenbaum, but I've never asked him if that was true...
Hi, everyone. Just wanted to offer a few things we learned when we took our son to see Dr. Rosenbaum at UCLA, just in case what we learned might be helpful to...
i am a 40 year old woman,and have battled this all my life . When i was very young there was a surgical attempt taken to fix this(it's my left eye that refuses...
