I did not know I had duanes til my late 30's. My optometrist told me they probably knew since I was a kid but no one ever told me. I finally asked what its...
Thank you for sharing your story Anthony. Isn't it amazing how little many physicians know when they see something outside their speciality area?? i know...
Can anyone tell me what type of hearing loss is associated with Duane's? I have Duane's type I, left eye, and never thought that I had hearing problems, but...
... Dear Liane, I asked my baby's PO and he said that he has not heard of any research on hearing loss and Duanes being connected. However, my husbands sister...
... words. Hers ... PO was ... right ... left eye, ... to ... since! Her ... left ... have to ... "worse" ... compared ... about ... thing, but ... me. ... ...
Hi some research indicates narrowing of the eustachain tubes in poeples with Duanes. this in turn may lead to a build up of glue in the ear - leading to ...
Okay, everyone. Now you can say "I told you so." I know you're too kind to say it, but you can. Today I took Haia to a lovely new PO, Dr. Lisa Verderber, of...
sarikb@...
Feb 6, 2002 6:17 am
4117
Sari, It shows how important regular checks are made in order that amblyopia can be detected early on. Haia is still of an age when patching will work so ride...
... Yes, there is research connecting Duane's to hearing loss. I thought it was high frequency hearing loss and more often on the side affected by Duane's (so...
Bhettle@...
Feb 6, 2002 2:37 pm
4119
... And, I think that's exactly the right way to handle it. Be honest, acknowledge her feelings about how it is hard and help her through it the best you can....
Bhettle@...
Feb 6, 2002 2:40 pm
4120
After a draining day yesterday (which ended in my feeling a little better after sharing my woes with y'all), I awoke this morning to a surprise. Haia's first...
sarikb@...
Feb 6, 2002 6:21 pm
4121
Thanks for the idea of a children's book on patching. The library hasn't heard of any. Anyone out there? (Maybe I should write one!) Sari...
sarikb@...
Feb 6, 2002 6:32 pm
4122
<A HREF="http://www.amazon.com/exec/obidos/ASIN/0929173244/qid%3D948747222/103-1937662-8561406">Amazon.com: buying info: Blueberry Eyes</A> Found this one on...
Bhettle@...
Feb 6, 2002 7:04 pm
4123
Dear Sari, It is hard to remember now, but India's vision started to deteriorate at around 2 years of age. Her head turn had steadily increased over time and...
I was wondering if anyone knows of any circulation problems related to duanes. My daughter's (type 1 left) hands and feet keep turning purple and I am having...
Barbara -- Yes, hypersensitivity is associated with 2 different types of hearing loss. The phenomena are termed 1) hyperacusis and 2) recruitment. I've done...
My son is 12 and has very poor vision in his Duanes eye It im[roved after his surgery but has declined again in the last few years. We used dilating drops for...
Thats funny that you said that because my daughter had purple and very dry hands for her first 3-4 months of life. Being a young mother I didn't think much of...
Sounds like your daughter has adopted a great attitude: kids can amaze us sometime. When my daughter first had to patch, she was startimg kinderarten. i gave...
She is 10 1/2 months. Did your daughter's purple hands go away on their own? My daughter's hands and feet are not dry just purple. Sometimes their cold and...
Can anyone please e-mail me any information that they have on Duane's syndrome. My 16 month old son was diagnosised this morning and I am wanting to know...
No, my daughters went away on their own. I never even mentioned it to her doctor. But if her hands are cold from it, then your probably right in assuming it is...
Hi Brenda and welcome to the group. Yes, I think everyone feels a bit shell shocked when something unexpected is diagnosed in our little ones but you will find...
Dear Brenda, Without repeating myself too much, the best way forward is to take your time and read through the message archives from this group, together with...
Sari, As you may already know, Daniel has been patching his 'preferred' eye since he was two. At age three he had surgery on the Duanes eye (Medial Rectus...
First of all, thanks, Kathy, for your message. You will not believe what I came across while going through old papers tonight!! I found a draft of a...
sarikb@...
Feb 15, 2002 6:37 am
4136
Oops! The notes I had written about getting a special-eduation specialist to write an introduction actually pertained to another book idea that I'd been ...
sarikb@...
Feb 15, 2002 7:01 am
4137
Sari, I believe that most publishers prefer to select the illustrator. That is what I have heard at writing conferences. Send that great book in, get it...
Anita Johnson
ajohnson@...
Feb 15, 2002 11:41 pm
4138
I have a 5 yr old son with Duanes in the left eye with a slight head turn. He has been wearing glasses for it and he also has a stigmatisim and is far sighted....
Hi everyone! I havent posted for a while. I have been busy with work and getting Hayley of to preschool. She absolutaly loves it. Hayley is having the vrt...
