My son is 10 months old Type 1 both eyes. Daiven had surgery on the 31st of January. After seeing the PO for a follow-up visit, I was told that the surgery...
Hi! I'm new. First off, i would like to thank the people that set this group up & all the other participants!! This is really great!!! My daughter (now...
... Hi, Welcome. I don't think there is any research on the subject. My son is also socially awkward and is also 5.5 years old. He's been given a diagnosis of...
Bhettle@...
Mar 2, 2002 1:48 am
4170
... As I understand it Goldenhar's can be associated with Duane's - in other words some people will have both. So, even if he does have Goldenhar's it ...
Bhettle@...
Mar 2, 2002 2:08 am
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Julie, Are you concerned about the effects of patching on India's binocularity? Are you doing any exercises with her to help her use her eyes together? I am ...
sarikb@...
Mar 3, 2002 8:15 am
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Dear Sari, Yes, it had crossed my mind in the past, but I remember when India had her surgery with Dr. Rosenbaum he did say not to patch for more than 2 hours...
Hi we patched Alex's left eye for a while to encourage him to use his right eye. At the time he was in danger of getting amblyopia (sp) ashe wouldn't use his...
Hello all, I think I mentioned it back a few weeks ago, but Aaron will have both ear tube placement (2nd set) and surgery on his eye (type 1 right eye) this ...
Todd & Kris White
whitelex@...
Mar 3, 2002 3:52 pm
4176
Hi, The fact that Aaron is turning his head indicates that he is using and wants to use both eyes together. However, as in India's case, she did use both eyes...
... Yes, you sound on track. Our son has always used both eyes together well and had good vision in both eyes but he had a big head turn. He didn't need to ...
Bhettle@...
Mar 5, 2002 4:00 pm
4178
hello, Thanks - Barbara & Carla - for the insightful responses to my inquiry... ...we have not had an 'official' diagnosis regarding Sophie's sensory...
... Very interesting and it sounds like she's coping with a similar set of issues as my son Cyrus. He does have a sensory integration dysfunction diagnosis and...
Bhettle@...
Mar 6, 2002 2:55 am
4180
Hi there. I have been on this group for a short time. My son,Mark,just turned 5 in mid February. He is in his second year of preschool and I just registered...
Hi Cheryl & Barbara, I hope I am not straying too far from the subject matter of the Duane's group. I apologize for my off-topic posting... From what I now...
... I would agree. And, let me note that my son and a friend of his both have sensory integration dysfunction. Two more different children you couldn't find....
Bhettle@...
Mar 7, 2002 1:50 am
4183
Who do I bring the sensory issues up with the regular Pediatrician or the PO? It doesn't seem that the regular Ped. is familiar with Duane's so I don't know...
Bhettle@...
Mar 7, 2002 1:50 am
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Wow Cheryl, you wrote a lot! :) I'll try to give you some help as far as the sensory integration, shy kids, and whatever else. LOL First, as far as Mark's...
Hi everyone. Hayley had her surgery on tuesday and everything went well. (so far). Hayley spent the whole day on tuesday after theatre with her eyes closed, So...
Hi everyone. Hayley had her surgery on Tuesday and everything went well. (so far). Hayley spent the whole day on Tuesday after theatre with her eyes closed, So...
Kylie, I'm reading your post about Haley's surgery as we're about an hour from leaving for the hospital for Aaron's surgery - also type 1, right eye. THe...
Todd & Kris White
whitelex@...
Mar 7, 2002 1:08 pm
4188
Hello, In the best interest of brain-injured children, a new listserv has been formed to help parents and advocates access Medicaid reimbursement of Hyperbaric...
Glad all is going well and hope the soreness is better soon. If it helps my son moaned and cried about the eye drops too and now ask him about the surgery...
Bhettle@...
Mar 7, 2002 3:02 pm
4190
... I agree there can be some difference in the rate that boys and girls develop fine motor skills, but if a teacher is noticing a delay I would get it ...
Bhettle@...
Mar 7, 2002 3:51 pm
4191
In a message dated 3/7/02 10:54:50 AM Eastern Standard Time, Bhettle@... ... THen perhaps Duane's is a brain damage sort of issue. Betsee...
Hi! I'm so glad I found this group...quite by accident really. I was looking for info by doing a yahoo search and this popped up! A little background. My dh...
hi again, I forgot to add that my daughter has shown signs of low tone, particularly in the upper body. She hit all of her milestones on target for her...
Welcome Alison, You win the observant parent award for diagnosing Duane's. Most interesting since even many pediatricians haven't heard of it. I do think it's...
Bhettle@...
Mar 7, 2002 8:32 pm
4195
Kylie how wonderful to hear that the surgery seems to have gone well with early evidence of some lateral movement - fabulous! Tahlia also kept her eyes closed...
Alison, Glad to have you with us. It certainly helps that you know a fair bit about duanes already. Interesting story. You will certainly learn a lot with...
