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duanes · Duane's Retraction Syndrome
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Messages 4275 - 4304 of 11976   Oldest  |  < Older  |  Newer >  |  Newest
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4275
Hi everyone, and hello to all the new people. Hayley had VRT surgery on 5th march 2002. right eye Duane's type one. 5 yrs old. Hayley is doing really well . We...
kylie
hayleytuck
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Apr 1, 2002
10:58 am
4276
Kylie, That's great news! I very much look forrward to seeing a photo when you have one. All the best. Julie Andrews (India DRS type 1 left eye 4 yrs)...
Paul & Julie
pa035
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Apr 1, 2002
2:02 pm
4277
Kylie what wonderful news for Hayley! We are so thrilled that all has gone so well. I am so glad that you settled on the VRT op. I hope that someday soon...
Don & Sue Ware
don_sue_ware
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Apr 1, 2002
9:42 pm
4278
Alison, I just read your message and wanted to mention that my daughter (now 5) also wasn't a cuddler, didn't like to be covered by a blanket, and didn't crawl...
sarikb@...
Send Email
Apr 2, 2002
11:31 pm
4279
Took Haia to see Dr. Rosenbaum yesterday. Below is a quick synopsis of the outcome. But first... Julie, I finally downloaded a picture of India and am so...
sarikb@...
Send Email
Apr 3, 2002
12:01 am
4280
I'm so glad to hear that Hayley's results are good. By the way, Dr. R said that the swelling after surgery can last several weeks. Sari...
sarikb@...
Send Email
Apr 3, 2002
12:04 am
4281
So glad to hear that Haia is doing well and is a good candidate for surgery. We're taking Elliott (9 months) in for VRT surgery in mid-May, and he was also...
Liane Herbst
lfran84
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Apr 3, 2002
2:51 am
4282
Sari, Sounds like you all had a very productive appt.! That's good to hear. It will be interesting to see how your daughter takes to the glasses. But at her...
alisonslp
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Apr 3, 2002
3:13 am
4283
Dear Sari, So glad to hear it went so well for Haia. The benefit Haia will gain from VRT, not to mention the markedly improved cosmetic appearance is well...
Paul & Julie
pa035
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Apr 3, 2002
8:14 am
4284
Hi, we were just diagnosed yesterday with type 3 Duanes. Does anyone else have experience with this? Our son is 8 months. Thanks, Tracy...
Damon LaCaille
djcmom2002
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Apr 3, 2002
9:10 pm
4285
Tracy, My son, Ian, also 8 months, has Duanes type 1 in his left eye. He was diagnosed at 6 months. You'll learn a lot from this group. Ian has no head turn...
kmccord2002
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Apr 3, 2002
9:51 pm
4286
Welcome tracey! Our daugher is 16mths and has type 1, left eye. It's very good that your drs noticed it early. They will be able to more closely monitor any...
alisonslp
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Apr 3, 2002
10:21 pm
4287
My granddaughter has bilateral type 3. Anita...
Anita Johnson
ajohnson@...
Send Email
Apr 4, 2002
2:56 am
4288
I think my daughter does too. Her's isn't very severe though. Betsee...
JThomp6938@...
betsee_t
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Apr 4, 2002
1:01 pm
4289
Thanks for the replies. Alison, it is a son, and type 3 is abduction and adduction. It is only his right eye. I noticed it at 7 mo. My son decided to break...
Damon LaCaille
djcmom2002
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Apr 4, 2002
1:44 pm
4290
Hi Everyone- I just wanted to take a minute and share with you about our March 15th visit with Dr. R. He was wonderful. There were no new surprises. Hannah...
jbeazoglou
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Apr 4, 2002
2:35 pm
4291
What I mean by bilateral is both eye are affected. The left eye moves very slightly. The right eye, not al all. Megan is nine years old. Anita ... From:...
Anita Johnson
ajohnson@...
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Apr 4, 2002
3:39 pm
4292
Great News Lisa! All the best Julie Andrews...
Paul & Julie
pa035
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Apr 4, 2002
5:36 pm
4293
hello everyone! I am new here ...already recieved a warm welcome so I thought I would bite the bullet and ask ...what or how do we know the degree of head...
Brandi Campbell-Stovell
brandilynwind
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Apr 4, 2002
10:59 pm
4294
sorry forgot to sign Brandi! ... Get your FREE download of MSN Explorer at http://explorer.msn.com . hello everyone! I am new here ...already recieved a warm...
Brandi Campbell-Stovell
brandilynwind
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Apr 4, 2002
11:03 pm
4295
Brandi...a head turn is when the child needs to turn her head to align the eyes in primary position so that she can use both eyes together (binocular vision)....
alisonslp
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Apr 5, 2002
1:57 am
4296
Brandi there is a pic in the archived messages dated 9th May, 2001 in message number 3295 which gives a clear view of a "head turn". The attachment listed...
Don & Sue Ware
don_sue_ware
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Apr 5, 2002
5:51 am
4297
hi everyone, Does anyone know the difference between VRT with "posterior fixation" and VRT with "lateral fixation"? Are those 2 variations of the regular VRT...
laurie hardaway
lmhardaway2001
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Apr 5, 2002
7:50 pm
4298
Just for the record - Tahlia's surgery was the VRT with lateral fixation suture. It was done here in Australia with excellent results. (Duanes type 1 Left eye)...
Don & Sue Ware
don_sue_ware
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Apr 6, 2002
12:39 am
4299
Sue and Laurie, Yes, interesting that there are two variations. Laurie, it would be interesting to hear the outcome when you have found out more. Julie Andrews...
Paul & Julie
pa035
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Apr 6, 2002
9:24 am
4300
hi all, I think I may have answered my own question about the operative sutures; I am attaching a report about VRT which analyzes results in DRS patients, one...
laurie hardaway
lmhardaway2001
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Apr 7, 2002
1:35 pm
4301
Laurie, Yes you are correct. Lateral does in fact mean to the side, and posterior to the back. Heidi ... From: laurie hardaway To: duanes group Sent: Sunday,...
William Walsh
karatemomtoo
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Apr 7, 2002
3:38 pm
4302
Dear Laurie, Yes India had this technique - VRT augmented with posterior fixation suture. Julie A....
Paul & Julie
pa035
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Apr 7, 2002
6:13 pm
4303
Thankyou so much for your prompt accurate response! Brandi! ... Chat with friends online, try MSN Messenger: Click Here Brandi there is a pic in the archived...
Brandi Campbell-Stovell
brandilynwind
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Apr 7, 2002
9:08 pm
4304
Laurie thanks for puting the notes up on the list again as I have been interested to note that Tahlia also had the exact same procedure - Dr Gole referred to...
Don & Sue Ware
don_sue_ware
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Apr 8, 2002
9:08 am
Messages 4275 - 4304 of 11976   Oldest  |  < Older  |  Newer >  |  Newest
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