Sorry I missed the chat room date - but I do not know how to access the chat room anyway as I have never been in a chat room before... Pat ... This mail sent...
I was not sure of the time....I also went on at one time and no one was there. I am in Florida. There may of been a hour time difference or maybe longer....
clara1909@...
Feb 3, 2003 3:32 am
5485
Hi Clara, Im sorry to hear about Jordans experiance, Im not sure why Jordan is not able to do what the other children can. Is it just the duanes that slows...
... That sounds really hard and of course it's a big issue. Were the activities ones that physically he couldn't do because he was too young, were they too ...
Bhettle@...
Feb 3, 2003 1:36 pm
5487
Gina, Yes, Jordan has dystoina,abductor, "restless leggs" and Duanes. I know this may seem so very small to others..........but....I really need to know how...
clara1909@...
Feb 4, 2003 4:12 am
5488
Barbara, Thanks for your advise. Jordan is in pre-school. My mother ownes the child care center....what a Blessing. Jordan has always been around children...
clara1909@...
Feb 4, 2003 4:22 am
5489
Don't want to be a downer, but sometimes you have to be aggressive with IEP's. The DOE where I am from can be resistant and it takes a long time to get it...
This has also been my experience we have 2 years waiting lists and that's just to be seen, it's good to get your doctor on board. Donna ... From: Desiree...
I don't know where every one lives but in certain parts of FLA there is a program called Fiddlers or child find. What they do is test children that are ages...
Hi my name is Donna and I was diagnosed with Duanes Syndrome at the age of 18 months, I am now 44 years old I have lived with this problem my entired life ...
Hi Donna and welcome to the group. You will certainly find a great deal of information in the past messages and in the FAQ document available. Do you know...
Hi thank you for the welcome, and yes, what a great source of information you have here. I live in Upstate NY a little county called Schenectady I am not sure ...
Welcome I am also new to this board due to my daughter having type 1. I felt very alone until I found this site. I mentioned it to my daughters eye doctors and...
Hi all, I am wondering if someone who is living with Duane's can help me. My daughter is 7 and she is having a really hard time at school. They constantly...
I going to assume that when you say "they" constantly correct her head tilt you are referring to teachers or other school personnel. I guess you've tried...
Okay--I'm finally getting the time to write back more systematically about my surgery. The surgery was January 3 (see below for some initial notes about the...
My son, Nick, has Duanes Type 1 in his left eye. He just turned 12, yesterday(!), and has learned many of the tricks to working with his Duanes over the...
Amy Rose
azrphr@...
Feb 11, 2003 6:15 pm
5501
Harrah, Ashliegh!!! aj ... From: Ashleigh Smith <furman01@...> To: duanes@yahoogroups.com <duanes@yahoogroups.com> Date: Tuesday, February 11,...
Anita Johnson
ajohnson@...
Feb 11, 2003 6:47 pm
5502
My suggestion would be that if the school personnel are so thickheaded that they can't hear a mother say she's supposed to tilt and that makes it so she ...
Bhettle@...
Feb 11, 2003 9:10 pm
5503
In a message dated 2/11/2003 10:53:03 AM Eastern Standard Time, ... as a teacher and a mom of a Duane's kid..I say AMEN! to that!...
Sue, Off the subject of Duanes for just a moment............. My son Jeremy who is in the Navy stopped in Australia while coming back to America in June,2002....
clara1909@...
Feb 12, 2003 3:09 am
5505
Hi, my name is Jo, I'm married to Albert and we have four children, Jamie is nearly 8 Willem is 5.5 Caitlyn is 2.5 Kristen is 16 mths It is Willem who has...
Hi Donna What a difficult time for you with the school situation. I don't know if our idea will be of any help to you but we made up a display folder for...
Hi Clara May Thanks for your comments - yes we do live in a very special country and we are so grateful for the beauty of our land - I hope you can get to...
Donna, Hi, I found your email interesting. My son is 1 1/2, duanes type 3 and we have just begun patching last week. Were you having your "good" eye patched...
Hi Tracy: I’m not sure I’m the Donna you want, but, my daughter is Duane’s type 3 and we did patch for four years. Do you get the bandaid like patches...
Tracy, I have a daughter with type I Duane's in her left eye and we were told the exact same thing. We actually patch both eyes (alternating days) for an...
