Jodie, just wanted to comment that I looked at Gavin's photos. Not only is he beautiful but his "Duanes" is barely noticeable. I don't think I would have...
Hello, I have been lurking and not posting messages. Whew! Being a mother to a 2 y/o and a 3 m/o is exhausting! Welcome to all the new members. Anyway, as I...
As you all know our local PO visit is tomorrow. But the more my husband and I talk I think we have decided to make the trip to LA. My question is this.. For...
hey you guys =). i'm 16 from north carolina and my name is Sara. Duanes has affected me in many ways. I feel alone, isolated, and I don't know anyone with it....
Thank you Sara for your message. There are a lot of issues that kids with Duane's must deal with that many parents may not even consider. I can relate to...
Hi Sara, Thanks for your words, my daughter has also had a lot of teasing, she feels like you I think, very lonely and she is eight years old. I hope you have...
Hello guys! I am a 27 yo from Austria and i have bilateral duanes type 1 in both eyes. Last Thursday I even lost my job because of it, I am very shortsighted...
With our experience Dr. R was very prompt replying emails, the next day even. The turnaround time from initial contact to the Surgery date was around 4 months....
What is Dr. R's email address? My daughter has been to him twice, yet I never have corresponded with him via email. I took Haia to a vision therapist who has...
SariScribe@...
Jul 8, 2003 9:28 pm
6100
You can find it here http://www.jsei.org/ SariScribe@... wrote: What is Dr. R's email address? My daughter has been to him twice, yet I never have...
Marching with duanes is definitely a challenge! But I thought it might be worth hearing a perspective from someone who DID march with duanes--quite ...
Dear Ashleigh, Thank you for these wonderful insights. My son, Nick, is 12 and has played the saxophone for 3 years. It took us awhile to figure out that...
Amy Rose
azrphr@...
Jul 9, 2003 1:07 pm
6103
I hated marching, but was not allowed to be in any other band unless I was in marching as well. The only way to get out of it was to break my leg or come down...
Jodie, It all depends on his schedule, but once you have decided to go ahead with surgery it doesn't take too long to organise. You basically have 3 days, a...
Hi I'm a 16 year-old teen that was diagnosed with duanes syndrome at age 2. I am starting to research my problem to see if surgery is an option for me. If...
Hi Sara I am so sorry to hear that you have suffered from the jibes of others because you have Duanes - do you wear glasses? I have only discovered I had...
Hi, I'm new to this group. My daughter Hols is 4 1/2 with type I duane's in her left eye. She was diagnosed around 18 months and has been seeing PO since...
Welcome to the group. I am the mother of Taylor, who is now three. She was diagnosed with Duane's Retraction Syndrome Type 1 (left eye) at seven months of...
... I live in Baltimore. I have seen Dr. Dankner and he mentioned something about not being able to go through with surgery because of nerve damage but I want...
Carolyn -- I'm sorry to hear that Taylor is still having alignment problems. Do you have health insurance? The insurance should cover all/most of the surgical...
Carolyn, thanks for sharing your experience. I'm in southeastern VA, and I'm trying to educate myself as much as possible. My PO didn't even tell me what...
... That would bother me. Have you gotten a second or a third opinion? Even if traveling to CA isn't an option I would look to other good POs in your area and...
Bhettle@...
Jul 13, 2003 3:13 pm
6113
Bob -- Dr. Rosenbaum is definitely both a DS and a VRT expert -- he sees a lot of DS patients and seems to be one of the most experienced in VRT. He is also a...
I knew Taylor needed to have surgery because her head turn was so great, and her vision was beginning to deteriorate in her left eye because she crossed so...
I was never told that the severity of the DS was what determined VRT or MRR. Both can align the eyes, and VRT often gives lateral movement, which can range...
Bob -- Someone also posted recently that there's supposed to be a DS/VRT expert at Wills Eye Institute in Philadelphia. Still not close to southeastern VA, ...
There have been a couple of posts recently from people with DS who felt that it has negatively affected them. I know that others can be cruel with their...
Liane, No I don't know how to access the archives here. Someone else knew of someone here who had surgery here in Norfolk--I'd like to try to find what she's...
Liane, No I don't know how to access the archives here. Someone else knew of someone here who had surgery here in Norfolk--I'd like to try to find what she's...
I just wanted to add on to what Liane said about teasing and how she overcame it. I'm 26 and I have type I Duane's in both eyes. I am lucky in that both my...
