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duanes · Duane's Retraction Syndrome
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Messages 6170 - 6199 of 11976   Oldest  |  < Older  |  Newer >  |  Newest
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6170
Dear Yahoo! Groups Member, IMPORTANT NOTICE: As part of our efforts to ensure that all Yahoo! Groups users enjoy the same high-quality service, we will...
kathy ken j chrusciel...
crushski
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Aug 1, 2003
1:38 pm
6171
Please remove me from your message board. thank you...
Marylee
ml_squared
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Aug 1, 2003
3:26 pm
6172
please remove me also..i don't have time to read all of the constant emails. Marylee <marylee@...> wrote:Please remove me from your message board. ...
Samantha Jarrell
pnkette
Online Now Send Email
Aug 1, 2003
3:57 pm
6173
I am wondering if anyone can answer a few basic questions... Does anyone know roughly how many VRT surgeries Dr. R has performed? For how long has he been...
tanyaeloise
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Aug 1, 2003
6:33 pm
6174
Hi, Tanya - don't know the answer to the Dr R question, but my impression is that he has done quite a lot. I think some of the other members would have a ...
Desiree Glaser
deshawaii
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Aug 1, 2003
6:58 pm
6175
Please continue to send me e-mails etc regarding Duanes - I was unable to access the page you mentioned on your e-mail - it said this page could not be found?...
patsmith21@...
patsmith332000
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Aug 1, 2003
7:32 pm
6176
I thought it was the MRR that eliminates the headturn while the VRT procedure is the one to try to get more movement. I know it is possible to have VRT and...
tanyaeloise
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Aug 1, 2003
8:46 pm
6177
Hello Chaya- Children's Eye Physicians 303-488-0000. I would try to see Dr. King or Dr. Desantos. Also Dr Bowman-303-861-8888 at Childrens Hospital. They...
tanyaeloise
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Aug 1, 2003
10:38 pm
6178
OK - this is my very basic understanding of DRS and the surgeries. The problem with DRS type 1 is that the nerve that tells the eye muscles to move the eye...
deshawaii
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Aug 2, 2003
12:48 am
6179
Forgot to mention in my last (very long) post that today Alana did the "eye trick." She kept looking at different things straight and then "crossed" saying...
deshawaii
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Aug 2, 2003
12:50 am
6180
Hi Desiree- The eye trick story is too cute. I am picturing her saying "One mommy, two mommies" Adorable! Anyway, we are sceduled for VRT with Dr. R. Oct...
tanyaeloise
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Aug 2, 2003
2:24 am
6181
Tanya -- The vertical deviation is supposed to be correctible by further sugery. After 2 VRTs (my son has bilateral Duane's) he ended up with aligned eyes, ...
Liane F. Herbst
lfran84
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Aug 2, 2003
3:21 am
6182
Tanya -- I tried to get that information out of his office, with no luck whatsoever. Please let us know if you find this out! However, I think that the good...
Liane F. Herbst
lfran84
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Aug 2, 2003
3:23 am
6183
tanya- i am still struggling with the head turn issue. i can't decide if morgan has a head turn or not. since she is only 7 months old, i wonder if you can...
leslie olmstead
leslie_o92
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Aug 2, 2003
4:03 am
6184
Tanya - what you describe with Eloise is what I fear. Your primary PO said that she didn't need surgery and Dr R said that she does. We may be sitting on Alana...
Desiree Glaser
deshawaii
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Aug 2, 2003
9:43 am
6185
Hi Desiree- The link with his information is http://www.jsei.org/patient_care/pc_Doctors.asp?DisplayEmployee.asp? EmployeeID=15601 This should be his resume...
tanyaeloise
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Aug 2, 2003
3:51 pm
6186
Hi leslie- When she looks at you straight(both ears showing) do her eyes appear crossed? It is hard to tell at that age. Is she sitting up by herself? In...
tanyaeloise
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Aug 2, 2003
4:03 pm
6187
I forgot to answer how Dr. R determines headturn....He basically looked at her and just said she has a 15-20 degree headturn. i was picturing some device that...
tanyaeloise
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Aug 2, 2003
4:21 pm
6188
Hi everyone- I have not looked into this firsthand but thought it was very important. Read post #5540 regarding state benefits. I hope this helps. I think...
tanyaeloise
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Aug 2, 2003
4:38 pm
6189
Tanya -- I'm not certain about losing alignment with VRT. I think it is more likely that VRT alone is not completely successful in obtaining full alignment, ...
Liane F. Herbst
lfran84
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Aug 2, 2003
6:03 pm
6190
Please post photos in the "photo" section of the web site so that they will be preserved for future reference. Once the file has been uploaded, there is a...
kathy ken j chrusciel...
crushski
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Aug 2, 2003
6:23 pm
6191
Hi Liane- We will be there Oct 26-29. What about you? I know Gavin (Jodi)is scheduled for surgery I think the 16th of October. Where do you live? Thank you...
tanyaeloise
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Aug 3, 2003
1:37 am
6192
Hi Tanya. Our appt is for 10/20 -- but we live in LA, so there's no travelling involved, other than the hour-long trip that the rush-hour based appts tend to...
Liane F. Herbst
lfran84
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Aug 3, 2003
4:29 am
6193
Hi, I don't post often, but I do read the posts. I have a couple of questions. I haven't been able to read all of the latest posts, and I just now printed...
Aileen Abramowitz
gabbicarly
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Aug 3, 2003
5:50 am
6194
Hi Aileen -- I'm glad to hear that things are progressing for you and that you're making plans to see Dr. R. What you described is common for Duane's -- the...
Liane F. Herbst
lfran84
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Aug 3, 2003
6:34 am
6195
Hi Aileen- Go to WWW.GOOGLE.COM and type in vertical rectus transposition surgery. I just did and many journal articles came up. As for VRT's primary...
tanyaeloise
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Aug 3, 2003
3:19 pm
6196
... morgan has a head turn or not. since she is only 7 months old, i wonder if you can really tell yet. My daughter's consultant demonstrated her head turn to...
emjcol
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Aug 3, 2003
5:08 pm
6197
-Aileen, last week I corresponded with Dr. R.'s office via e-mail with several questions. My understanding is that the VRT can corredt crossing, decrease head...
bobcathey2
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Aug 3, 2003
8:51 pm
6198
Hi- I do not know this firsthand but had mentioned in a previous post that it is possible that the state (depending where you are) may cover some or all of...
tanyaeloise
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Aug 3, 2003
10:02 pm
6199
Hi, yes our PO here in the UK consulted with Dr. Rosenbaum in our daughter's surgical plan. India had VRT with Dr. Rosenbaum in LA and had MRR six months later...
The Andrews
pa035
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Aug 3, 2003
10:07 pm
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