My son has worn glasses since age 2, but he never objected to wearing them (probably because his parents both wear glasses and it made him feel grown up). The...
hi tanya- our appointment with dr. R is nov. 19, 20, 21. morgan will be 11 months old. it is weird for us in that if he decides that morgan needs surgery, we...
My daughter doesn't have Duanes and wishes she did because she wants to wear glasses. Lenscrafters has a good thing going with their ad that states: "Are you...
Hi: i vaguely remember being diagnosed with Duan'es years ago, when i was about 10/11. My parents confirm this. I am now 25, and have done alot of research on...
Curiously, the people who have spoken against patching have no personal experience with patching for Duanes. I would have made exactly the same arguments (you...
My daughter was just diagnosed with duanes syndrome type 1 right eye. I took her to the PO around 6 months of age and the doctor wasn't very helpful. I...
My daughter has had glasses since december 2002 and the orthoptist is telling me she might now need a patch. I dont see how this is going to help her as i was...
My son Ian is 2 and was diagnosed with Duane's Type 1 in is left eye at 6 months. We see his PO every 3 months. Lately I've noticed that his eyes no longer...
... Sharon, I had the same feeling about patching, especially since two doctors had said it would not help, but we tried it anyway since there was all to gain...
My daughter Haia wore a conventional opaque patch for months and months. It was psychologically hard for Haia (because of the way it looked -- though I did my...
SariScribe@...
Sep 10, 2003 2:27 am
6284
Hello- I started having severe back pain within a month of the corrective eye surgery for my 20% head turn. My doctors and I are stumped as to the cause of...
Hi Tammy, I know that at least one other person has posted about this same thing before so you maybe able to find something in the archives. If you think about...
Bhettle@...
Sep 10, 2003 5:04 pm
6286
Thank you, Barbara! I thought asking about the connection was a shot in the dark but it sounds like there may be more people out there with back pain also. I...
Hi Tammy, I was wondering if you were happy with the results from your surgery. I had surgery in January and the doctor thinks I will need a few more surgeries...
... I am VERY happy with the results althought I would by fibbing if I said I didn't wish just a little bit that I had gotten more mobility in my left eye. I...
Hi! I was so happy to read your email! I don't have anyone to talk to who has just recently gone through this surgery. Most surgeries these days are on young...
... Hello again! I agree! It's nice to be able to speak with someone that has been through it all..I chuckled when you mentioned the sitting dilemna. I also...
Hi_ I just read the posts for all of you that had recent surgery. I just want to say how happy I am for you all. It brings a tear to my eye and a joy to my...
I do not know what to do.....My daughter is scheduled for full VRT surgery October 27th with Dr. Rosenbaum. I know over the months I have posted messages...
Hi Tammy- You said you got 10 degrees of movement from your surgery. I understand you wish it were more but does that extra 10 degrees make a big difference?...
Hi! I've been reading your recent posts with a great deal of interest, because my son had bilateral VRT surgery a year ago at age 1 and I have no way of...
Hello- I didn't have adjustables either. The Dr thinks the reason the surgery wasn't as successful as we hoped was because we didn't do the adjustables which...
Tanya -- I'm sorry to hear that things are confusing and upsetting right now. Do you have a videocamera or a digital camera which takes mini-movies? I think...
Hello- Yes, the 10 degrees that I do now have in the left eye makes a great deal of difference. I can now move it more to left which means that my head turn is...
Hi Liane- I only saw double when I didn't turn my body enough degrees to compensate for the lack of midline and head turn. I grew to compensate for the double...
Tanya, Just my layperson's response: My first thought as I read your description of the varying head-turn was that maybe it depended on whether Eloise is...
SariScribe@...
Sep 11, 2003 6:18 am
6301
Tanya, As I've posted before, my daughter Alana sometimes has a head turn and sometimes doesn't. I notice it when she is concentrating on something. I THINK...
Desiree -- I've emailed Dr. R. in the past and always gotten a quick response. But I sent him a pic of Elliott with a suspected vertical deviation about 6...
hello folks! I have bilateral duanes and i had 3 surgeries, two on the left eye and one on my right eye - I had the last surgery (on my right eye) in February...
I can see why you are confused. A few ideas that you may or may not have already tried: Taking video tape when you see her doing this and share it with the...
