Alison, If I may just make a comment. The light reflex gives no indication on vision or patching. A person with one blind eye can still have a good centered...
Hi there-Dr. R thinks it may be tight we will know more after our visit on the 12th. He thinks it is tight because she has the ability to look out laterally...
Hi Desiree- I have not heard that before. I will ask Dr. Rosenbaum this when I see him next week. I hope all is well with you. Happy New Year. Tanya ... ...
Thanks, Tanya. I would appreciate you asking Dr R about the whole fusion and vertical deviation thing if you have a chance at your appt. As I mentioned in a...
Hi Guys, Just wanted to wish you luck for those visiting Dr. R. in the next few weeks and especially Tanya who I know has had a tough time, like myself,...
Hi, Julie. I'd like to thank you for your post where you commented on the timing of surgery. When I first joined this group (about 2 years ago), I looked back...
Hi Desiree, I think in the case of your daughter the majority of PO's would recommend the same course of action as your PO. The main indication for surgery is...
Just my 2 cents. Elliott did have a very severe case of Duane's (no primary alignment at all, in either eye) and we had VRT surgery in each eye. He is one of...
Yes, that was my understanding regarding the indications for surgery and I was comfortable with Alana's eyes. I started questioning everything when she adopted...
Liane, I'd love to see photos of Elliot (Jonathan, too). Not just to see the vertical deviation, but to see him. Desiree ... (no primary ... eye. He is ... ...
Hi Desiree, I guess I was like you too in that I had to exhaust every avenue before I was satisfied I had done enough. I personally found that prior to India's...
Hi everyone, Although I have not posted any messages lately, I still keep up to date by reading the daily posts. My daughter, Kiara (type 1, left eye) has her...
When I posted yesterday about Elliott's vertical deviation, I did not mean to imply that that was a reason not to pursue MRR or VRT if it is warranted. We are...
i have apparently had duanes all of my life - yet i have ignored it up untill 4-5 years ago when i was doing a magic eye picture and i didnt see what all of...
This website can help you they provided people with Doctors the have resources on all medical http://www.nacps.us check out there awsome support group they...
I am probably the oldest person ever to write to this group. I am a 55yo woman with Duanes (30 degree head tilt). Recently my left eye seems to be turning...
I have not had the surgery myself, but I have assisted in a few adult Duane surgeries. You are never too old to have your eye muscles on, and eye muscle...
You may want to try to search the archives under adult and surgery. There have been postings in the past from adults who have successfully had surgery. Barbara...
Bhettle@...
Jan 5, 2004 2:04 pm
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I've heard that VRT is really best for Type I. Coby has Type II and III with both eyes affected, and our PO said that VRT wouldn't be good for his situation. ...
Hi Today we were told that George (12) has Okihiros syndrome and duanes, we had never heard of either before, he has a right eye problem which he compensates...
I just found this site and am thrilled to learn more about this syndrome. I am a 41 year old woman and have been living with this all my life. When I was a...
In a message dated 1/7/2004 11:40:52 AM Eastern Standard Time, bezborodko@... writes: I can help you find a reputable pediatric opthm. in Nothern NJ (or in...
Hello all, We spent the day in Boston at Mass Eye & Ear with with our daughter,Kiara today. (Type 1, left eye) It turns out that the doctor we saw, Dr. Laby,...
Hi-Dr. Rosenbaum performed full VRT on my daughter 2 1/2 months ago. My advice would be if Kiara ia a candidate for the surgery have it done. I know it is...
