Hi there, It's my first time posting and I'm so glad to have found this group! My 19 month-old son has duane in the left eye (type 1.) We discovered it when he...
Hi- I'm new to this group and thought I would post my story now since I have some questions. Zoe was diagnosed with duane's at the age of 6 months. She has...
I was intrigued, so I ran your post by my sister the audiologist. She's done some checking into links with duanes for me in the past, and the general consensus...
DISCLAIMER: Upon further consultation, my sister would like me to clarify that her email expressed only an educated opinion and NOT a medical diagnosis of any...
Hi! My son has Duanes type 1 rt. eye . After his diagnosis we were refered to a genetic counselor who tested his hearing right away. She felt that there was a...
Hello ive posted a few times, my son has Duanes type 1 in his eye. no head turn, i have been to three doctors all of which say to me that there is no surgery...
My 6 year old daughter has Duane's or a 6th nerve palsy. She had surgery, medial rectus recession to the left eye, when she was 4 years old. We first went to...
Hi All, I'm sorry I didn't post earlier, the past week was a hard week for us. Tiffany's VRT surgery was done by Dr. R on Tuesday, it wasn't as smooth as we...
Hi Angie I am so sorry to hear of your difficult week and in particular wish to extend our sympathies to you having miscarried your third baby - in itself that...
Hi Angie, What a terrible time you have had. I'm so sorry to hear about your miscarriage and the difficult time Tiffany has had with her surgery. My daughter,...
Hello Angie, First of all, let me extend my sympathy to you and your family during this very difficult time. Being that I've miscarried before I know how...
Hello everyone, Well, Jordan had full VRT surgery this past thursday and her results were pretty much what I had anticipated. Her medial muscle is moderately...
Hi Angie, What an ordeal you and your family have gone through. I am so sorry for youe loss, and for the horrible surgery experience. I hope that Tiffany heals...
Hi Diane, I am glad that Jordan is doing better. THat must have been a scary experience. Did Dr. R's staff everr see anything like that? How did Dr. R know...
Hi, My daughter Carly is 22 months and also has Type 1 Left eye. She is scheduled for VRT surgery this Thuesday. The past 2 monmths, she has been, I think...
Hi, My daughter Carly is 22 months and also has Type 1 Left eye. She is scheduled for VRT surgery this Thuesday. The past 2 monmths, she has been, I think...
Hi Aileen, When we talked to the staff they just responded every case is different. However, my husband remembers waking up swinging and punching as an adult...
Hi Diane, Thank you for all of the priceless info! You have truly helped to prepare me. That valium ordeal sounds scary. I just can't wait for it to all be...
Hi Diane, Sounds you like had a pretty similar outcome to India's. I was initially disappointed post-VRT as India didn't look much different, but the...
My daughter had a medial rectus recession two years ago. She is now 6 years old. Right after surgery she began to turn her head the opposite direction. The...
Hi Julie, Being that I spoke to so many different people in this group I figured Jordan would need the follow up MRR surgery so I really wasn't disappointed....
My one yr old has had 2 really bad ear infections one resulting in fluid in her ear and resulting in appts with ENT specialist, the other one just clearing up...
Hi Julie, I've been meaning to ask you a question about India. I noticed in some of her pictures she was wearing eye glasses and I was wondering what for....
First I would like to thank everyone who replied, I feel reassured from some of your's past experience that the bleeding and inward eye position might be...
You may want to get another opinion. It sounds as though they may have overcorrected her eyes!?! My son had MMR surgery in January and we are very happy with...
Hi Diane, Yes India still has her glasses, but she only uses them while at school, computer work or reading. Pre-surgeries her vision was deteriorating in her...
Hi Diane, I just realise what I typed and obviously meant to say that India, without her glasses, would be legal to drive when she is older with the vision she...
I guess I have been worried it was an overcorrection too. Although no-one at the P.O. seems to think so. I can't imagine going putting her through the...
