"Duane Syndrome" INSPIRATION FOR AWARENESS CAMPAIGN Kevin Justice Scott BORN 6/10/01 I WANT TO START AND LEAD A NATIONAL AWARENESS FOR DUANE SYNDROME...
INSPIRATION FOR AWARENESS CAMPAIGN Kevin Justice Scott BORN 6/10/01 Hello I am Kelly Scott and I want to Start & Lead A National Awareness Campaign For (D. S.)...
Hi, Kelly While I agree that more could be done to make sure doctors / researchers are aware of duanes, there are several available resources that you might...
... check.... Ashleigh ==================== Ashleigh Powers Ph.D. Student Department of Political Science The University of North Carolina at Chapel Hill ...
Welcome to the Group for Duane's Syndrome 1,2,3 My name is Kelly I am the group Manager/Founder and I want you to know I am Dedicated to Helping the members of...
sent this response to Kelly once, but I haven't seen it posted, so I though I'd try again. Best to all! Ashleigh ==================== Ashleigh Powers Ph.D....
hmm...sorry for the double post! I'll try to be more patient! ;) Ashleigh ==================== Ashleigh Powers Ph.D. Student Department of Political Science ...
Hello, I am so glad I found this group! I am 26 years old and have known that I have Duane's syndrome since college. As a child, no one told me what was wrong....
I really hate to hear that you are going through all this. I just wanted you to know that I totally sympathize. I am 34 and battling what you are everyday....
Hi, I'm so sorry you have had such a hard time. Where in AZ are you? We live in Willcox but Kara's (age 14, type 3 left eye) PO is in Tucson. His name is Wayne...
ABOUT ME ---- KEVIN JUSTICE SCOTT I Have Duane's Syndrome 1,2,3 And Super Tight Eye Muscles Which is Apparently Very Rare When Associated with DS (Duane's...
I'm afraid I don't understand. Is there something about your son's duanes that keeps him from seeing or does he have other eye problems as well? Most of us...
Hi, My daughter has had patches for her glasses but haven't seemed to work for her. I have now to try putting the drops in her eye. Has anyone tried this? With...
Last fall I found out that my, at that time 10 month old, son had Duane's. I have since been worried about what is going to happen to him. I consider what it...
Hello. I completely understand just what you are going through. Our first child, my daughter was diagnosed at 6 months and has the mild type 1. She is now 20...
i always ask my mom what was wrong she always changed the subject on me.i really didnt notice my eyes were different until 5th grade when i really got made fun...
I thank you very much for your letter. As of yet no other child has been diagnosed with Duane's or anyhting like it. My oldest daughter had contracted Group B...
I am new to all this, but i am a true believer in the glass is half full. I am sorry that your mother was unable to help you with this, there maybe many...
I am in Joplin,MO, and the way I found my son's PO was asking around. I spoke with several different O and then spoke with my pead's. They all recommened the...
I am in Joplin,MO, and the way I found my son's PO was asking around. I spoke with several different O and then spoke with my pead's. They all recommened the...
Hi John, I am a fellow East Coaster. I live on Long Island. MY 2 year old daughter, Carly, was diagnosed with Duane's Type 1in her left eye when she was 7...
I am so sorry to hear that you are going through such a difficult time. I am a 41 years old woman with duane's. I can remember how difficult it was when I...
Re: Surgeon recommendations John- If you want someone close to conn, one of the top surgeons and specialists in the country is Dr Leonard Nelson at Wills Eye...
SLPwoman@...
May 9, 2004 9:24 pm
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Hello everyone, I have not posted for quite some time, but I thought I would update you on my one year old daughter, Kiara. ( Type 1, left eye) We are ...
Not sure if this helps, but one thing I would keep in mind is that you do have some time. The problems with the head and neck are way down the road so I ...
Bhettle@...
May 10, 2004 2:02 am
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Hi Everyone, My 2 1/2 year old son is scheduled to have Strabismus Surgery this Wednesday. After reading through some of the posts, I was curious what the...
H Cally. The strabismus surgery that your son is scheduled for is most likely Medial Rectus Recesssion (MRR), not VRT (Vertical Rectus Transposition). Both ...
Hi! My 21 month old son has DS (type I, rt. eye) and is scheduled for a tear duct probing in June. His Duanes eye tears whenever he is outside, when he whines...
For those of you who may be new to our group, welcome! You might find the section in the duanes website with links to other web sites related to Duane's...
