Yes, I have hearing loss myself in my left ear, and my left eye is the one with the Duane's. There is information on the archives about this. Pat Smith UK ... ...
As Pat says, there is some evidence that duanes may be associated hearing problems in some cases. However, I wouldn't say it's *common.* 70% of people with...
Hello I am a 34 year old woman w/ duanes. And I was considering surgery beccause it seems to be getting worse or at best it is just bothersome. I was curious...
I feel terrible when reading these e-mails. I was teased so much as a kid. My parents always told me my eyes were beautiful. I really didn't understand how...
Hi, I can sympathize with your daughter. I have Duane's and my parents always told me I too was quite lovely. I know exactly what she is going through. Kids...
Hi I'm 28 and have duanes syndrome. I wanted to reassure your daughter that it's not the end of the world. It was obvious when I was younger but I learnt to...
My 3 yrs old daughter finally got to see her PO (now that we have moved to the area). He is Dr Robert LaRoache and works out of the IWK in Halifax NS. He gave...
I guess we were lucky, my daughter was 2 when she got her glasses and she was excited for the first few weeks and wanted to wear them all the time. Then the...
Hello, I'm looking for some facts on Duane's. My son was diagnosed with it at 3 months old. I was told that it would never affect his vision and that it...
Carey, A couple things to keep in mind. First of all, if he was tested by your peds dr that could be just a general test and not truely accurate. I have heard...
I would definitely encourage those of you with teens who have Duanes to have the teens join this group themselves, or at least to read some of the postings. I...
Carey- I suggest you getting another eye exam by a PO that is well versed and had a good understanding of duanes for perspective and to be there to answer...
SLPwoman@...
Jul 9, 2004 6:22 pm
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Hi, Carey. If both your son's eyes are changing at approximately the same rate (and it sounds like they are), then the problem is probably not related to the ...
thankyou for the encouaragement i get realy teased because of this curse and sometimes when people make remarks about my eye i get realy upset and imbarased ...
hi im the girl with duanes my mum was talking about its hard to belive i look nice with this weird eye but i have mates and my boyfriend is very supportive ---...
Pat - Thank you so much for your information. My daughter has an appointment with an audiologist next Friday. We are going to test her hearing. Just in...
Hope you will let us know how your daughter goes on at the audiologist and that her hearing is OK. Hearing loss does not happen to everyone with Duane's - have...
Zero tolerance for spam means one strike you're out. "As Seen on TV..." has been deleted and will not be seen on our site again. This member joined the group...
Kathy - I'd like to say "thanks" for being so on top of the inappropriate emails. You have really helped to make this a top notch site and group. Thanks, ...
Hi, Ida. Sorry it has taken me so long to see your email and reply to it. Fortunately, my daughter's been doing fine in life. I think my main concerns are...
SariScribe@...
Jul 15, 2004 9:50 pm
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Hi, Anderson! I remember when you wrote a few years ago, and it's exciting to hear from you again. Glad to hear you're doing so well! I hope life continues...
SariScribe@...
Jul 15, 2004 10:13 pm
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Does anyone out there know how much it costs to have the VRT and/or MRR surgery, preferably with Dr. Rosenbaum (but even if you have a figure from a different...
SariScribe@...
Jul 28, 2004 7:35 am
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We may be moving soon and I am wondering if anyone knows a good PO that has experience w/ Duanes in the SD area? Thanks Maria...
HI Maria, It would be well worth the drive to go to LA to see Dr. Arthur Rosenbaum at UCLA! Good luck! Aileen mg6503 <mg6503@...> wrote: We may be moving...
Hi Sari, I have got an appt. for VRT with Dr. Arthur Rosenbaum on Nov 14th for my 1 year old daughter. Our insurance doesn't cover it. They said it will cost...
Thank you, Aparna! Anybody know if the MMR surgery is of comparable cost? Thanks, Sari...
SariScribe@...
Jul 28, 2004 6:21 pm
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I believe that that is their standard price for any strabismus surgery -- whether VRT or MRR. When we had the surgery, the price also included hospital and...
Greetings to all members of what appears to be a very knowledgeable group. I must say that after reading for hours through countless messages pertaining to...
Sorry for not writing sooner butI wanted to let everyone know how the app. in Kansas City went. I knew that this was a teaching hospital, but I must admit I...
My son, Matthew has type 1 left eye. His head turn is barely noticable, but he has developed an upshoot and his eye has been turning in alot more lately. This...
