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duanes@yahoogroups.com
Sep 2, 2004 9:39 am
7646
Dear group, We are so excited that we found this group about 4 months ago. Our son, Brandon, was six months old and we had just found out he had Duane's type...
hi every body, iam so happy to found this group. iam 22 years old i have duane syndrome type 1 left eye, with no historical duanes in my family(dad and mom...
that is a very good question and i would also like to know the answer. Trina From: "amjad_yorke" <amjad_yorke@...> Reply-To: duanes@yahoogroups.com To:...
Dr. Rosenbaum, UCLA, stated that chances for those without family history would be about 5%. Just slightly higher than general population, but probably not...
kristen- what ever happened with dr nelson? Stacy you can email me privately if you like...
SLPwoman@...
Sep 7, 2004 11:25 am
7651
Hello, Everyone! I posted a few months ago. I am an adult with Duane's affecting my left eye. Yesterday I saw a neuro-opthalmologist for a check-up, since it...
Hi, MY name is Aileen and my 2 1/2 year old daughter Carly had VRT im March (she was 1 year and almost 11 months) with Dr. R. I know you would like pictures,...
Hi Aileen, My name is Eileen and my daughter Kiara is 16 months old. She has duanes, type 1, left eye. I have received various opinions from different...
Alex has bilateral duaens and walked at 11 months (after his club foot operation) i put his early walking down to his twin sister who walked at 10 months and...
I've heard from a number of sources that they aren't really late until more like 17 or 18 months but if her tone seems low an evaluation is always a good idea....
... until ... is ... and I ... kids with ... list. ... to ... and/or ... it is ... Hi Barbara, Thank you for the information regarding hypotonia. I will...
Just catching up on emails and saw the question about reading. My daughter started reading at a normal age (fluently at 7). I was told by an adult with Duanes...
SariScribe@...
Sep 13, 2004 11:25 pm
7658
Eileen, My son is 8 now and started walking around 20 months or so. He didn't walk really well until he was closer to two. He was floppy though and drooled so...
Re Delayed Walking Very interesting. My grandson has Duane's and also was hypontonic. We did not crawl until 17 months, then walked at 18 months. He had...
Grretings, it's been a while since I posted as well but my daughter was a late walker she walked around 16months but did not really take off until around 2 as...
Dear Barbara Your comment about hypotonia is an interesting observation and occasionally something we have noted in some people who have enrolled in our...
Hi San I have had Duane's all my life and have lived a pretty normal life, having reached the age of 64 and have only recently found out that it was Duanes...
Hi, I have been slow with my e-mail lately, sorry for the delayed response. Carly has Type 1 in her left eye. She is now almost 2 1/2, and had the surgery at...
HI MY NAME IS ANNMARIE AND I AM NEW. MY DAUGHTER WAS DIAGNOSED AT 4 MONTHS OLD WITH DUANE SYNDROME. I HAD TOLD MY DOCTORS THAT SHE DOES NOT HOLD HER HEAD UP...
AnnMarie, Has her ophthalmologist seen the way she is tilting and turning her head? Usually when people with Duane's adopt a head turn it is a good thing...
Hi! I'm Andrea, mother of Whitney, 5 months old. Whitney was just diagnosed with Duane's type 1 in her right eye this week. As you can imagine, my husband...
Hi Andrea, My daughter ,Carly is 2 1/2 with Type 1 in her left eye. I don' t know how it will affect her as she gets older, but hopefully it won't. Where do...
Andrea- I have said this to others in this group prior, but it is the most solid important piece of advice I haave ever gotten My daughter got diagnosed with...
SLPwoman@...
Sep 18, 2004 11:53 pm
7670
Hi, Aileen. We live in Greensboro, NC. Our dr suggested MRR to correct her head turn and said that's the simplest way to do it. When I got on-line and read...
Thank you, Stacy. I needed to hear that! Andrea ... solid ... is one of ... anything on ... say how ... old, but you ... vists to the ... big deal-it ... ...
Andrea, If you haven't you might want to try Duke Eye Center for their surgical opinion. I know they often recommend the VRT, and supposedly, they're one of...
Hi Andrea and welcome to the group, I think that I would be seeking the opinion of another PO as the great bonus of VRT surgery IS the gaining of some lateral...
