I'm trying to find out more about these surgical procedures but have had no luck. Does Dr. Rosenbaum have a website? Where is he located? Thanks, jim...
Jim, You are looking for the Jules Stein Eye Institute Web site. It is a generalized site, but the information you are looking for can be found within the...
Hi Aileen, Thanks for your response. I made the appointment directly with his secretary. I have not sent him any e-mails. Did you sent him any info before...
There is detailed info about each surgery in this board's archives, but briefly: Both surgeries work by repositioning the working muscles around the eye to ...
Hi Jim Here is the weblink for Dr. Rosenbaum. http://www.jsei.org/patient_care/pc_Doctors.asp?DisplayEmployee.asp?EmployeeID=15601 but it just has the contact...
Hi, I e-mailed Dr. R pics in advance and let him know where we were coming from. He told me to schedule it for a pre-op, surgery, and post-op within the same...
Hello there My name is Caroline Andrews and I am the Research Study Coordinator for the Engle Lab, based at Children's Hospital Boston and affiliated with...
Sorry I have not written in a while, busy little beaver with 5 kids. Braydan had eye musle surgery on the 27th of Sept. It was decided that he needed...
Hi Caroline, my name is Gina Gambrazzio. I have duanes type 1 I believe, left eye, doesnt go left. I dont know how far back hospitals keep records, but, I...
Hi Caroline, My daughter's case is a sporadic case of duanes and I would be more than happy to participate in your studies. We do however live in the UK, but...
HI Caroline, I have a 15 month old daughter with Duane's in the right eye she has developmental delays.There are no family members with Duane's but several...
Hi Caroline, My name is Debbie I have a 15 month old daughter with Duanes in the right eye she has developmental delays. There are no other family members with...
I AM interested... I have a head turn... but evidently no other signs of Duanes.. my oldest daughter, 23 yo.. evidently has Duane's .. but no head turn... go...
My daughter Hannah who is now eight, Was diagnosed with Duane's at four but I am still unsure what type she has. Hannah attends a local school with a learning...
Hi all This Arvind Bharadwaj who have Duane's syndrome. I have some posted my quiries in this group regd surgeries available and i have got some replies to the...
I have found this site helpful in information on Duane's. Website: http://www.tch-genomics.org/research/engle/ This information maybe helpful as far as how the...
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Hello everyone, I really enjoyed reading through the posts. My son is 16 months old and has duanes retraction. We have been to numerous PO's and all have had...
HI David, I am from NY, too. My daughter Carly is 2 1/2. We live on Long Island. I have heard of Dr. Wang. Another great PO is Dr. Maury Marmor in Plainview. ...
Hi, all. I have a question. My baby girl, Whitney (6 months) was recently diagnosed with Duanes type 1 right eye. When we went to see the PO, he gave us the...
Your instinct is right, Andrea. That IS unusual. Usually the PO wants to monitor the child's vision on a regular basis, to make sure ambliopia doesn't ...
SariScribe@...
Oct 12, 2004 2:54 pm
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My name is Jagoda. I have a daughter Iris, who is 6. She has DS type I, left eye. We live in Croatia. When Iris was 1 year old, we saw 2 POs and both told us...
HI there, As I understood, the results of MRR could be seen immediately. Any other experiences? WELL IN OUR CASE WITH INDIA SHE LOOKED WORSE POST VRT BUT AFTER...
Hello, My son was told he has Duanes but they never told us what kind they werent sure that was two years ago..Now they think he has Macular Degeneration from...
Hi everyone, Two weeks ago, my husband and I met with Caroline and took part in the research study at Children's Hospital in Boston. Caroline was a pleasure...
We too have agreed to participate in the research and we live in the UK, so it doesn't matter. I should be receiving the kits to be included in the study...
Hi Lisa, I can understand how worried you must be. If you type Macular Degeneration into your search engine you will find a wealth of information that should...
Hi Julie, Dr Rosenbaum was surprised Iris looked worse after VRT. Did your talk to your PO in UK or to dr Rosenbaum about India looking worse after VRT? Jagoda...
Hi, We spoke with Dr. Rosenbaum about India looking worse post VRT and have to say we bombarded him with pictures showing how she looked. He explained that a...
