with the ds syndrome does come many other problems that is why it is called a syndrome...i have many problems with my ds...hearing loss...eyesight loss...lower...
Im a 31 year old male, who has been dealing duane's his whole life, i know there are worse things! I am very frustrated with my appearance, i have trouble...
Surgery is and option. Many of the people on this message board could see fine, their surgery was for cosmetic reasons as well as helping with head turns -...
Anita Johnson
ajohnson@...
Nov 4, 2004 6:34 pm
7773
My daughter wears glasses to keep her eye's level. 10 minutes without them and she looks like she has lazy eye. She is not willing to discuss surgery so when...
... talking to someone and they turn around to see if I am talking to someone next to them or behind them. Or when someone is giving me directions and says it...
... Caroline, Anything I can do to help. 40yo female duane's left. Surgery 1988 limited results with eventual left eye drift further inward over the years....
Hi, my name is Kelly and I have not posted in quite some time. I have a little girl who is now 27 months who was diagnosed with Duane's when she was 8 months...
I must post, as I saw Dr. R. several weeks ago (26, Duane's type II, right eye, massive head turn). A doctor in Phoenix wanted to operate on my good eye. There...
Dear Kelly: I don't know if I'm one to give advice, but I would be more than happy to give you my opinion. My son was 1st diagnosed with duane's when he was 9...
I think before you get any surgery it always makes sense to get another opinion or two. You should feel confident in the doctor you choose. It is common to...
Noelle, My son also has type 1, left eye, and a 15 degree head turn. He was also diagnosed at the age of 9 months. He is 17 months old now. I am so glad to...
My son will be 3 on Sunday and we learned of his Duane's (type III, left eye) over the summer. His first PO said he wouldn't recommend surgery at this point...
from my personal experience, im a 33 year old male with duanes, i never got, for lack of a better word, "teased" until high school, and i attended a very small...
I think the best thing you can do for your child is to make sure he understands his condition--completely--in a positive light before any negative comments...
Does humor (i.e., the "eye trick") help at that age, or would that just attract the wrong kind of attention? Kids show off double-jointedness and other ...
SariScribe@...
Nov 10, 2004 6:32 pm
7786
count me in on that one please!!! i need suggestions too as Alex with bi-lateral duanes is now suffering from teasing and taunts. He wouldn't stay with his...
Friends, Glasses hide a lot of the problems espessialy if you get smaller, thick rimmed frames. (they have illiminated my daughters head tilt completly.) My...
Hello All For all those parents concerned as to how their children are being perceived, there is nothing you can do about it. Kids will learn to deal with the...
Well said. I second everything you said and at 46 I am secure in who I am. Your kids will learn to be stronger and hopefully more caring and thoughtful...
Most often my son will get teased by "friends" of friends. It just sucks that these kids have to have special eyes and be teased for it. Thank you ... Do...
aLEX IS THE YOUNGEST CHILD OF OURS WITH dUANES lUCY DID THE EYE TRICK THING AND HAD NO PROBLEMS ETC. Mark never really said but Alex whose eyes are 'worse' is...
Debi - It's good to hear that another PO said the same thing ours said. My daughter is nearly 4 y/o and our PO said that since her eyes are "aligned in primary...
Hi, I have a question? The question is has any of the children or teens with type 1 ever complained of the side of the face where they can't see out hurting?...
hi, Its been a long time since i have posted but I have been hit by constant migranes and I figure that it is cause by my head tilt from me having duanes. This...
yes. I've been there with the headaches. I had surgery to reduce the headturn and that has helped some. you might also try turning your whole body rather...
Hi there, I don't have Duane's(my son does) but I was plagued with terrible migraine headaches for years and was taking Fiorinal w/codeine 5 times a week until...
heloo every body' i have duane retraction syndrome type 1, left eye. i have a retraction and of course disability to move my left eye to the left, i have...
Kelly and Ashleigh- My son Matthew has type 1 left eye, with no significant head turn. In my humble opinion if a doctor had told me that surgery was his...
HI- My daughter with Duanes- 5 years old, type 1, left eye, 15 degree head turn- started Kindergarten in Sept and is dooing wonderfully- but the teacher said...
Toni Passano
tonipassano@...
Nov 14, 2004 3:35 pm
7800
I don't think Kim meant to address her email to me, but I'll respond in any case. Surgery for duanes is generally reserved for patients with a significant head...
