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duanes · Duane's Retraction Syndrome
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Messages 8013 - 8042 of 12024   Oldest  |  < Older  |  Newer >  |  Newest
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8013
... It is considered as a "rare desease". Around 6% of the people in Europe have strabismus. And among these only 1% suffer from Duanes. Thus, 0.06% of the...
Christoph J. Gartmann
riromamei
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Feb 1, 2005
10:01 am
8014
Hi all. First of all, welcome to all the new members. Someone recently made the comment that the doctors know best. I would like to qualify that by saying that...
Liane F. Herbst
lfran84
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Feb 1, 2005
10:42 am
8015
Thank you very much, Mike and everybody on this site, for your support! I'm so glad I found this group. It's been very helpful! Katerina ... and ... days ......
katsivak
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Feb 1, 2005
1:46 pm
8016
Liane, I agree that some doctors prefer MRR only because they don't have any experience with VRT. This is why it is really important to make a lot of research...
katsivak
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Feb 1, 2005
2:24 pm
8017
Hi Katerina -- I'm really glad that you were able to get all that good advice before making your decision. Our experience with POs was pretty different. The...
Liane F. Herbst
lfran84
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Feb 1, 2005
3:16 pm
8018
Hi Marie I have had type 1 Duanes for 64 years, and so far it hasn't got worse! I did have corrective surgery when I was a child in the early 1940's and have...
Pat Smith
patsmith332000
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Feb 1, 2005
4:03 pm
8019
Hi Liane, I totally understand how you must have felt with your second son after what you've been through. It's great that he's fine! Answering your question,...
katsivak
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Feb 1, 2005
4:05 pm
8020
Thanks Katerina! My understanding was that MRR didn't give any lateral movement at all, although I think that one other person on this board posted that her ...
Liane F. Herbst
lfran84
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Feb 1, 2005
4:51 pm
8021
According to the Engle Lab, duanes patients make up about 1-5% of all people with strabismus (eye motility disorders). I don't know how common strabismus is...
Ashleigh Powers
ashleighsmith
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Feb 1, 2005
5:11 pm
8022
And I am totally stymied by the fact that I know at least four people with it, this list notwithstanding!!!! So glad we have the internet to bring so many of...
SariScribe@...
Send Email
Feb 1, 2005
5:37 pm
8023
Pat, This is very reassuring to know, Thank you! We were told at the time my daughter was diagnosed, that the Duanes would likely get worse as she became an...
Kezia Johnson
montanajohnsons
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Feb 1, 2005
6:30 pm
8024
... In my case Duanes is a genetic defect. This is often the case. So it wouldn't be surprising if the other four people are relatives of yours? Regards, ...
Christoph J. Gartmann
riromamei
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Feb 1, 2005
6:52 pm
8025
well, I got the answer for myself... duane's or any type of strabismus for that matter are automatic disqualifiers in the military so much for having dreams......
*ask*
bu_crew
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Feb 1, 2005
7:04 pm
8026
I'm so sorry to hear of your disappointment. What about a civil career in an area that supports the military? In a message dated 2/1/2005 1:12:42 PM Central...
SariScribe@...
Send Email
Feb 1, 2005
9:26 pm
8027
So far they think it's a dominant gene when it's genetic, and the only one of the four (three besides my daughter) is a second cousin -- with no other cases in...
SariScribe@...
Send Email
Feb 1, 2005
9:27 pm
8028
... The muster before I had to go to the military service didn't consider strabismus as a reason for disqualification. Then, after two months, a military...
Christoph J. Gartmann
riromamei
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Feb 1, 2005
10:19 pm
8029
hi~ Just so you know, it really doesnt affect life..or at least it hasnt for me. If you have DS you just learn to cope with it. It becomes a natural part of...
haley shipp
cosmic_flowe...
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Feb 1, 2005
10:34 pm
8030
I have noticed that everyone talks about their children's PO. My daughter Megan (2 yrs old) was diagnosed Duane's Type 3 by an opthamologist. We don't have...
dthwboh
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Feb 1, 2005
11:41 pm
8031
Hi Jodie It's good that you are going to let the teacher know of your daughter's Duanes as it will help her to help your daughter. Over the years I have...
Don & Sue Ware
warehousesue
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Feb 2, 2005
1:36 am
8032
Hi! I would just like to make a suggestion. When your children are at school, ask the teacher to sit them in a place where they can see him/her without alot of...
haley shipp
cosmic_flowe...
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Feb 2, 2005
2:37 am
8033
Well, thanks so much! I am leaning toward an operation for her but have to research alot more on this. She wants to get into commercials and movies but with...
Marie Smith
craftiest000
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Feb 2, 2005
4:28 am
8034
I want to thank you Pat for the encouragment. Sometimes I think it is more me than anyone else noticing the Duanes Marie ... From: Pat Smith To:...
Marie Smith
craftiest000
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Feb 2, 2005
4:31 am
8035
"someone" didn't recently make that comment, I did. i guess i should have written a lengthy response stating that the doctor had to be familiar with all...
brandonsparents
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Feb 2, 2005
5:35 am
8036
Hi all its been a long time for me: I was just searching the net for more information on Duane's and came across this site that explains what it is and how it...
Trina Whittleton
trixy416
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Feb 2, 2005
8:06 am
8037
Hi Mike. I didn't mean to cause offense. But so many of us are taught to trust our doctors, and so many of us have learned that the local POs really aren't on...
Liane F. Herbst
lfran84
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Feb 2, 2005
12:57 pm
8038
Hi! I am 35 and have had trouble all my life with double vision, no vision and one eye being farsighted and the other being near sighted. Neither eye will do...
angelisette
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Feb 2, 2005
2:59 pm
8039
I did too. But I am 35 and am fixing to have surgery on the 11th of Feb. Which eye is your DS in?...
angelisette
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Feb 2, 2005
3:02 pm
8040
... You said you have Duane's in the right eye? All of the studies I have read have said it is normally in the left eye. I have run into about 5 woman in my...
angelisette
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Feb 2, 2005
3:10 pm
8041
We had a discussion on this list a few years ago, in which we speculated about all kinds of stars' eye conditions (possible Duane's). I can't remember who ...
SariScribe@...
Send Email
Feb 2, 2005
7:40 pm
8042
I'm Andrea, mother of Whitney, 9 months old (Type 1, right eye). Just wanted to write to thank you, Ashleigh, for recommending the Duke Eye Center for a second...
sweatjunk
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Feb 2, 2005
8:14 pm
Messages 8013 - 8042 of 12024   Oldest  |  < Older  |  Newer >  |  Newest
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