Our daughter was diagnosed at 4 mo and we did surgery the next week without a thought. Some of me now thinks we shouldn't of gone in so blindly. Not that I...
Hello, I posted here a long time ago but haven't kept up. I am a 39 year old female with typeII left eye. I have not seen a doctor about it since I was a...
Hi, my 14-month old DD (Natalie) is having a surgery in two weeks. She has a moderate form of DS in her left eye (face turn of about 30 degrees). We have a...
I know it is hard when you first find out your child needs surgery. We found out about my daughter at 5 months and waited until after her first birthday for...
Hi Mariko - I'm not sure if there is vision therapy for this condition. My daughter had surgery at 1 years old and was home by the afternoon walking around....
I have a question for those of you who have been through the surgery. Does the eye actually turn normally or not (after surgery)? My doctor says it is mostly...
For those of you who have been to see Dr R... do you have any advice on hotel choice? I've looked online for hotels/motels that are close to the medical center...
Hi, I have a newly diagnosed 8 yr old boy. Does anyone have any info to help his educators? They are pushing an ADD diagnosis that I feel is mis diagnosed due...
Correct me if I am wrong everyone, but there is no relation to behavior and this craniel nerve eye disorder. I have read this site for years and everyone has...
Hi Paula. I agree with Cathy that there is no connection between Duane Syndrome and ADD (although I am not a doctor). I have a toddler with Duane and was an...
Carmela, thanks so much for your reply! It re-affirmed my thoughts, and its great to have the support. carmelazega@... wrote:Hi Paula. I agree with Cathy...
Cathy, thanks for your reply. I have no dificulties at home with my son. I have asked myself ' How can a child with ADD spend a week at football camp, learn...
Paula, I hear you, maybe this years teacher will handle him better. It was 3rd grade when my son's teacher wanted him diagnosed ADD. I had him evaluated and...
To all those who responded with words of advice and encouragment: Thank you! It was so reassuring. And to see how many children have come through surgery so...
Hi all! I'm a 37 year old female with type 1 Duane's (right eye). My parents knew something was wrong with my eyes when I was an infant. I began wearing...
Hi All - Just wanted to share with everyone our experience in Los Angeles. Abby went to see Dr. Rosenbaum on August 1st who informed us that she definately...
We stayed at the Tiverton House right across the street. It was nice enough. A fridge in the room and you can use their kitchen. Laundry facilities on site...
sorry to hear about all the extra negatives but glad everything seems to be working out now and the surgery itself went well. Did Dr. R say anything specific...
Dr. R said he had not seen anyone hold her head up the way she does before. If you've seen her pictures in the Duanes files, it's (was) quite significant and...
Hi All, My pediatrician recently saw a case that was diagnosed as duanes I when the child was 2 months old. This diagnosis was confirmed by a pediatric...
If I had to guess: There's a condition known as 6th nerve palsy that mimics duanes in symptoms, but rather than being missing / malformed, the nerve is merely...
I'd agree with Ashleigh. It was likely a sixth nerve palsy. My dd's PO wouldn't definitively dx dd at 4mths, when I recognized the duanes. He said that it was...
I think anything is possible. My daughter has Duane's Type 1, left eye and noone in our entire family has it. She is also one of a boy/girl twin and I have 2...
Any advice on activity after surgery? We are taking Alana to see Dr R in December. If he feels that she could benefit from VRT we plan on going ahead with...
hi there I would think she should be fine going to disneyland on the monday - izzy recovered incredibly quickly and was running around the following day like...
Dear Katy I really hope Abby's infection had now cleared up - must have been really scary for you. Izzy had two operations when we went to LA, and we came...
Hi, Thanks for your post. It seems to be about cleared up infection-wise. There is still some redness in the eye and slight puffiness I think from the...
Hi, my DD, Natalie, had her left eye operated on this morning. She did great and is acting like herself already. But, I'm afraid that the surgery didn't...
I am sorry you haven't seen results yet. I can't speak from experience (yet), but am interested in hearing what others have experienced. My DD is going in...
Hi! I wanted to share our experience with surgery. My daughter, Whitney is 16 months old. She had VRT on her duane's eye and MRR on her non-duane's back in...
