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duanes · Duane's Retraction Syndrome
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Messages 8835 - 8864 of 12024   Oldest  |  < Older  |  Newer >  |  Newest
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8835
Hello, all! I found another picture of Laura, age 3 and I think she still has the head turn thing going on. Of course, this could just be the way she was...
mischief1172003
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Sep 1, 2005
1:05 pm
8836
... But the picture is entitled "Margaret Scott". Do we talk about the same picture? Regards, Christoph Gartmann...
Christoph J. Gartmann
riromamei
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Sep 1, 2005
1:54 pm
8837
Yes, I am Margaret...I can't seem to get the titles right on the pictures of her! Sorry!! ... But the picture is entitled "Margaret Scott". Do we talk about...
Margaret Scott
mischief1172003
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Sep 1, 2005
2:29 pm
8838
Hi, I just wanted to mention to you that my daughter's PO discussed the possibility of having my daughter wear some sort of blacked out contact on one eye one...
Katy Singlar
ksinglar
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Sep 1, 2005
5:34 pm
8839
I have bilateral Duanes, and I have prisms in my eyeglasses on both sides. They've been very helpful for me. Yes, they can include other correction as well....
calanthaa
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Sep 1, 2005
6:24 pm
8840
The newer pic that you posted doesn't seem to show the head turn as much. Looks more like posing position. But it's quite obvious in the first pic you posted....
alisonslp
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Sep 2, 2005
2:13 am
8841
I will try this weekend. I'm hoping hers is not too serious, but time will tell. Thanks for the information! alisonslp <adelorme1@...> wrote:The newer...
Margaret Scott
mischief1172003
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Sep 2, 2005
2:17 pm
8842
I have a question for all of the mothers of children with Duanes. Were any of you ever on any kind of medication to stop early labor during your pregnancy? ...
CHRISTIE BEMBRY
cdichristie
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Sep 2, 2005
3:10 pm
8843
I wasn't, but I was on insulin as I was diabetic. I did have heart palpitations, pre-eclampsyia, diabetes, sick the entire 9 months - you name it. We had...
Margaret Scott
mischief1172003
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Sep 2, 2005
3:43 pm
8844
The medications to stop early labor wouldn't not have caused the duanes. Duanes occurs by 10 wks gestation, way before any dr would prescribe labor stopping...
alisonslp
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Sep 2, 2005
7:22 pm
8845
You know, I was so sick for the whole time - and I have been agonizing over "what did I do wrong", "what could I have done better". I was sooooooo careful...
Margaret Scott
mischief1172003
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Sep 2, 2005
7:52 pm
8846
I have a child with Duanes and was NOT on any kind of meds for early labor. In a message dated 9/2/2005 11:11:28 AM Eastern Daylight Time, ...
carmelazega@...
carmelazega
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Sep 2, 2005
8:51 pm
8847
Hi Shells dont mind at all - it cost $6400 all in (off the top of my head but will double check) for the operation on one eye including anaesthetist, surgeon...
izzybuk2002
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Sep 3, 2005
5:52 pm
8848
I am an adult with Duane's syndrome. While I am not sure of the technical terms, only my right I is effected. It turns in but not out. I have had two...
Jill
jillh4424
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Sep 4, 2005
5:29 pm
8849
if you have true duane's, I'm not sure botox would help, except maybe to loosen the muscle that is unnaturally pulling your eye inward. But I would think, it...
alisonslp
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Sep 4, 2005
10:28 pm
8850
There was a discussion of Botox a couple of years ago, so it should be in the archives. I don't remember what the conclusion was, and would be interested in...
SariScribe@...
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Sep 5, 2005
1:42 am
8851
Hi Shells, Did you get my message? I did reply to you personally. It is awful to hear how Alex is suffering teasing and I can well understand how he must be...
Jools
jda32uk
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Sep 5, 2005
8:58 am
8852
Iv'e added a few more pics of India in the groups photos section. Although I don't post very often these days I will continue to be a member of this group and...
Jools
jda32uk
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Sep 5, 2005
9:19 am
8853
My daughter had a botox injection in Jan 2004 following VRT surgery the previous September. The idea was that the botox would relax the inner muscle...
emjcol
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Sep 5, 2005
1:34 pm
8854
That's not exactly how I understand it. The retraction doesn't indicate that the 6th nerve is present but malfunctioning. It's thought to be caused by a...
calanthaa
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Sep 5, 2005
1:36 pm
8855
Thank you, this gives me some more hope. I'm going to keep gathering information. If other people had this success, I think I will try the botox. emjcol...
Jill Humphrey
jillh4424
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Sep 5, 2005
1:43 pm
8856
Hello, I've recently found this great web site: http://www.shared-movies.net You can search and download over 80 million movies and other videos. It's...
kimholihan354
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Sep 5, 2005
8:00 pm
8857
My 3.5 year old daughter has Type 1 Duane's in her left eye (~10 degree head turn). I have read most of the literature, including Dr. Rosenbaum's Oct 2004...
gphayes
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Sep 6, 2005
6:02 am
8858
I checked out this group because it came up on a Google search for "Duane's Syndrome" a condition I have lived with since birth (type I, left eye). However,...
goodkashing
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Sep 7, 2005
8:31 pm
8859
Wow.. that made me feel better reading it because sometimes I feel like I am not doing enough for my daughter, while she seems just fine! She accommodates so...
madley9897@...
madley9897
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Sep 7, 2005
8:36 pm
8860
Thanks for your relating experiences. It's good to have hear from someone who has lived with duanes first hand. but, remember that you are coming from a...
alisonslp
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Sep 8, 2005
2:05 am
8861
Thanks for your posting. When I first thought something was "wrong" with my daughter, I aggravated her doctor. That one said she had a wide nasal bridge and...
Margaret Scott
mischief1172003
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Sep 8, 2005
12:56 pm
8862
I would like to both confirm and add to this posting. I am an adult with Duane's and, like this writer, had no problems as a child, adolescent, or young adult....
Liane F. Herbst
lfran84
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Sep 8, 2005
2:45 pm
8863
I agree with you a 100%. Please, don't make your child feel desable. I am 43 year old, university professor. I ride my bike to go to work every day. The only...
Ana Victoria Sánc...
avsanchezu00
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Sep 8, 2005
4:58 pm
8864
Just thought I would let everyone know that we are headed to Dr Rosenbaum on Sept 26th for a consultation with a tentative surgery scheduled for Dec 6th. You...
auburnaxo93
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Sep 8, 2005
7:27 pm
Messages 8835 - 8864 of 12024   Oldest  |  < Older  |  Newer >  |  Newest
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