Hi Diane, We scheduled the consultation, surgery, and follow up all within the same trip. My husband and I took both of our daughters to California, and made a...
tanya- just reading through posts and came across the new pics of eloise (and claire). your girls are beautiful!! thanks for the update...i sent an e-mail to...
Hi, Eva. Welcome to the group! I wonder if what you're seeing is a tightening of muscles over the years. The Duane's itself (which is neurological) doesn't...
SariScribe@...
Oct 2, 2005 4:58 am
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We are looking at when to fly home from LA. Any suggestions? Thanks Candi ... From: Aileen Abramowitz To: duanes@yahoogroups.com Sent: Saturday, October 01,...
Hello all! My granddaughter was born June 21, 2005. She was born one month premature and is one of twins (boy and girl.) She was diagnosed with Duane's at two...
My son is 7 and i have just been told he has duanes.I had always thought he had a lasy eye. He is also hearing impaired.i just wanted to talk to someone about...
Hi I have Duanes in my left ear with complete hearing loss in my left ear, but I had three eye operations in the early 1940's during World War 2, to correct...
Hi Marlene. I can't help you with a doctor since I don't live in your area, however I thought you would like to hear about my experience with my daughter. I...
I am new to the group. We just found out last week that our 8 month old daughter, Addison, has Duanes. The PO we saw immediately said we needed to do surgery....
Marilyn - I suggest you report this creep to your local AMA. My experience was similiar here in WV - my PO just said that there were no options and that...
HI MY NAME IS CHRISTIE AND I HAVE A TWO YEAR OLD DAUGHTER (CHLOE) WHO WAS DIAGNOSED ABOUT A YEAR AGO. I AGREE TOTALLY WITH GETTING A SECOND OPINION BECAUSE MY...
Hi I am Ashley and I am only 12. My mom is crafty000 and my photo is in the photo section of the list under Ashley Smith. I am a model and the last year my...
I've been reading about Duane's, and can't really find much information (as I've come to find out is a common problem) I'm 23 years old, and about a week ago I...
... Duanes is in fact something you are born with. So your symptons don't fit into Duanes. In fact, I am only a Biologist but to me it looks as if you have...
People who have duanes are born with it. While it's possible for mild cases of duanes to undiagnosed for several years, if your symptoms really did develop...
Hi Leah, As the others have said, I strongly suggest you seek another opinion - now. Quite frankly, I think a neurologist is the best option for what's...
Hello Carmela. Thank you for sharing your experience. I can understand not being ready for the prospect of sugery when your child is at such a young age. ...
At 4 months my daughter was diagnosed with Duane's Syndrome. The doctor sent a letter out and it stated that her right eye was the one with the problem....
Yes with our daughter the right eye turned inward but the left eye didn't move. It was stuck looking in one direction and the right eye even after surgery...
Hi maybe I was overlooked but I really would like some info if anyone can tell me Thanks Hi I am Ashley and I am only 12. My mom is crafty000 and my photo is...
Ashley It depends on which surgery you will be having. I am assuming you will have MRR. If that is true, they will take the working muscle on the outside of...
I'm 48 years old and was told by an opthamologist today for the first time that what is wrong with my eye is Duane's. He asked me if I had ever heard of it and...
Hi Ashley. Sorry if your post was overlooked. There are two types of surgery for Duane's (MRR and VRT) and both are outpatient and take less than an hour (but...
Hi Sheri. I just wrote a very lonh post about the surgery options that are available. Check out the message titled "For Ashley". (By the way, I only found out...
Hi Candi Good luck on surgery in Dec that is when I will be having mine too. Thanks for the info But I am not sure which operation I will be having. Will...
I want to thank you so much, not only for the info about the problem, but one real fear I had was if they would put me to sleep during the operation. Also the...
You're welcome, Ashley. Just to clarify, they *do* put you to sleep during the operation. Is that what you wanted? -- Liane ... From: Marie Smith To:...
Yes thenks so much. I am quite nervous Thanks ... From: Liane F. Herbst To: duanes@yahoogroups.com Sent: Thursday, October 06, 2005 10:51 PM Subject: Re:...
Hey, Ashley. Just saw your post. Don't know how I missed it-my name was Ashleigh Smith too until I got married! :-) In any case, I had surgery for Duanes...
