Patrick, I don't know that I agree or disagree with Laine's "bending thumb" thing, but another description that anyone can try is to attempt to "look" at the ...
Well here 's the deal, my son is 3 and a half years old and has duanes type 1 left eye cant look left, and he also has PDD, a form of autism, so communication...
I don't know that any 3 and a half year old could adequately tell his/her parents if he wants surgery, and many of us choose it for our children when they are...
I've read some of the posts,not all, so forgive me if I'm being redundant and asking a similar question. I just dont have time to read too much with 5 kids,...
... In your case DS is most likely a result of the deletion. ... DS describes the phenomenon that a nerve is not (or not properly) connected to an eye muscle....
... with ... One ... retractive) is ... connected ... reason to ... produce a defect ... difficulties ... he feels ... similar to the ... my ... most likely ...
Hi Melanie, I'm not an adult with Duane's, but I have a son with the same combination of stuff going on as yours so I hope you'll allow me to comment. First, I...
Hi Melanie. Welcome aboard. I have a 5 yr old dd with type 1 left. I am also a speech therapist and am intrigued by your post. If you don't mind sharing a bit...
I meant to add about the hearing test. It is routine to get a complete hearing evaluation when there is a language delay, particularly with other symptoms like...
Hi Alison, thank you so much for all your advice. he is involved in teh early intervention program. That is where I was given the advice to seek a hearing...
Hi Melanie, my name is Patrick and my son has Duanes and PDD-NOS, I was told by his pediatrician to have him checked at 18 months and i did not do it, I felt i...
hi every body,first iam sorry about my english :), i member to this group 2 yeras. its a great grooup, thanks every body. my name is amgd m from israel m 23...
Please get in touch with Dr Rosenbaum at UCLA. He seems to be the world authority on VRT. You can just send pictures and ask questions through his e-mail...
My daughter's doctor says he will do VRT after MRR (Dr. Michael Repka at Johns Hopkins University Hospital in Baltimore, Maryland). So I know it is possible,...
has anyone had any other problems that could stem from duanes? my son's pediatrician ordered an ultrasound on his kidneys and we found out that he has a bifid...
Hi, Carmela My name is Mariko and I have a 21mo DD, Natalie. I have questions about Dr. Repka. I am taking my DD to see him on 4/10 for the first time (I ...
Hi, Amy, "Bifid?" I am not sure what that is, but I have three collection systems (kidneys) myself. some people have four. Apparently it is random in most...
I second the recommondation to see Dr Rosenbaum. We live in Canada and just got back from LA. Our DD had VRT surgery here in Calgary (it wasn't successful)....
Hiya im Clare, I have duanes in my mums side of the family my mum, me and both my daughters have it all in different degrees. My mum has a kidney in the wrong...
Hello Amy, My daughter Lauren has type 1 Duanes and has urinary tract problems which we have been told are linked to duanes but it is unknown why. Lauren is 12...
hello chellie and amy, my son has duanes type one diagnosed at bolton hospital lancs, uk,at 9 months old. When I was pregnant they thought he had a problem on...
Hello Jane, Yes I am, I currently live right at the bottom tip of Lancashire, but will be moving very close to your neck of the woods as soon as we sell the...
my god chellie you will be practically next door! Astley is about a five minute drive! We live in westhoughton junction 5 M61 really nearby! my husband is...
I agree that Dr. Rosenbaum would be the doctor to ask about VRT after MRR. He definitely sees international patients, so it is worth sending photos and asking...
Hi Jane, No doubt I will bump into you and yours at Asda in Leigh or at Middle brook? This is were it gets complicated, My partner and I have 5 children. 2 are...
Hi Clare, I was so interested in your message,I like your mom have lower limb differences[no left hand] and I have duanes type 3. I have 3 boys and as they are...
Hi all, I have DRS type II, and have worn glasses since about the 7th grade. My left eye does not come full center, so I tend to turn my head to the left in...
I have a prism in my Duane's eye and it seems to help a lot. You can "test drive" prisms for about $25 a side by asking them to attach stick-on fresnel prism...
Hello, by far most of Duanes are isolated, meaning not associated with other health problems. But there are some rare syndromes, for example the Duane radial...
