... then no connection could be made, so there would be zero movement in one direction. If there is some limited damage in a nerve so that some movement can be...
Hi, I am an adult with mild DS in my left eye. My son is 9 years old and he does not have duanes - I took him to a specialist just to be sure. Any adults out...
My son is considering mrr surgery for Duane's Type 1 left eye. I would be grateful to hear from anyone that had the surgery to find out if there was any loss...
Hello, My nine-month old daughter was just diagnosed with Duane's Syndrome in her left eye. I have lots of questions and would appreciate any feedback. We...
... Hi Anna, I would definitely follow up with a paediatric opthamologist that has experience of Duane's Syndrome. My son was diagnosed when he was quite...
Hi Anna, I have a 15 month old son who was just diagnosed with Duane's in his left eye. Our situations are very similar. We learned that something was wrong...
Hi, I'm 43 years old and I have an eyelid drooping in my right eye (i have bilateral Duane but the most affected eye is the right). I have been considering...
Just to clarify, there are many of us on this board who have chosen surgery for themselves or their children and almost everyone has been very pleased with the...
VRT was a great success for us, as well. Because my daughter DID have a head turn she was a candidate for VRT. Along with the reduced head tilt the outward...
We are heading to Orlando next year to take the kids to disney and really would appreciate any tips that will make our trip the 'trip of a lifetime', We will...
I have some Coverlet Eye Occlusors (junior size) that we no longer need (hooray!). I'd be glad to mail them to someone who could use them. Email me your...
Hi Joyce, thank you so much for your reply. I am so encouraged by your advice and your son's story. I live in Quincy California (rural Northern California,...
Hi Allison, Thank your for your message. It is so encouraging to be in touch with people going through the same thing. I will keep you posted as I explore...
Hello Michelle, Thank you so much for responding to my posting. Your words were very encouraging. I have an appointment for a second opinion at Lucile...
I want to thank all of your for your encouraging and informative responses to my posting. I have an appointment for my daughter in two weeks at Lucile Packard...
I just moved from NY to Florida ( Palm Coast) Can anyone recommend a pediatric opthalmologist in this area? Coming From NY and having my son seen by Dr....
... NJ, NY and PA. All of them very good. I have read on the board about Dr. Rosenbaum in CA at Jules Stein, we are actually taking photographs of our son to...
Hi, I used to be a medical sales rep in North Florida. (I live in CT now). I am very familiar with Palm Coast and the Jacksonville area. I don't think you will...
Hi Joyce, I live in Fairfield, CT and we just saw Dr. Potter in Greenwich for my 15-month old. Do you know anything about him? I've heard he's very good....
... I don't know anyone in CT, but have been emailing Caroline Andrews from Boston. They have, for a number of years, conducted research into Duane's...
Hello Kim, My three and a half year old son was just diagnosed as possibly having Duane's Type I. His diagnosis was done here in Jamaica by a well known...
Hi Allison, Another Alison here. We used to live just outside of Hartford CT. We saw a PO group in Farmington, but that would be too far for you. There is...
Hi all I'am hoping someone can help me with this. My daughter just had a second vrt surgery (Dr. Rosenbaum). She now has a deviation (20 prism diopter left...
if you have myspace, then come join the duanes syndrome group. There are only 3 of us thus far in it, but we would like to meet people who have Duanes...
Hi Lisa. I'm so sorry that this is happening to you and your daughter. What a difficult time you are having. My son has a slight vertical deviation after his...
I would like to know what educational implications have been associated with DS? I am also including an email that I recieved from a teacher. Thanks for any...
I am 31 yrs old female with duane's syndrom. I can't turn my right eye to the right. I have had no surgeries or any treatments for it. I adapted by turning my...
My 16 mos old son was just diagnosed with Duane Syndrome Co-Contraction Type I in his left eye. We have noticed his inability to move his left eye outward...
