I would really be grateful to hear from anyone that had MRR or VRT surgery some time ago, to find out about the long term outcome of either surgery. Could you...
Bobbi, There was a link to a wide angle mirror in the "product" file of the duanes web site. This kind of mirror should be available where trailer accessories...
... I had MRR around 40 years ago. The result was quite ok until I was around 20. Then my DS eye began moving back towards my nose and the eye somewhat got ...
... the surgery. Can you tell me if you are having any double vision or blurring. Thanks Joyce ... VRT ... you ... around 20. ... somewhat got ... VRT. ... ...
... taking him back to be told the same thing. He now has double vision because of the tightness of his muscle with lack of use. He is having surgery on 23rd...
... I had surgery in early childhood, maybe at the age of 3 and another one at the age of 5. Until now I don't have double vision. Regards, Christoph Gartmann...
I have a quick question for those who have DS. When riding in a car, do you prefer to sit so your "good" side is toward the window or toward the inside of the...
That's exactly what I do for my three year old son Emilio (type1R). His sisters already know that's his seat and I leave the child safety lock on at that...
I myself dont have duanes but my 3 1/2 y.o. son does and i never thought about that before, and shouldnt he start to learn how to turn his head. Daniel Bilbo...
I’ve heard that a lot of head turning can be tiring on the neck muscles, so I’m trying to reduce the amount of head turning my son needs to do. I’m...
I worry because he is always running into stuff on that side, he cant look left with the left eye and ends up all bruised on that side IE: shin bone, left arm....
When my dd was younger, we always had her so that her duane's side was against the window. She has a twin who always sat next to her. It just made sense to...
Hi, I just asked my 15 year old (Type 1, left eye) your question. He said he usually picks the right side of the back seat, but isn't sure if that is because...
Amy Rose
azrphr@...
May 3, 2006 9:33 pm
9766
I'm 43 with Duane's and I like to sit with my good eye towards whatever is more interesting. If I want to look out, then I'd rather my good eye was outward....
Our Tahlia prefers to sit in the centre of the rear seat where she can look ahead most easily and turns her head only if she wants to see something more...
We have always placed Tasha's car seat so her "good eye" is facing outward. She is an only child, and I thought that way she can look at the country side...
Thank you , now i get it, you want your good eye toward what ever is going on, it just so happens i have an older car with no airbags so henry sits up front...
Thank you After reading this I moved my sons carseat that was behind the drivers side backseat to the right side backseat so that its on his good side now I...
I have Duane's mostly in my left eye. When I go to the movies, I like to sit to the left of center. My preference is usually the far left seats in the center...
Thank you so much to everyone who responded to my original post. I really appreciate your thoughts, suggestions, and feedback! - Wendi in Massachusetts ... ...
Hi my name is Jerry. My 10 year old daughter was finally diagnosed with type 2 Duane's Syndrome. Given that we have been home schooling for the past two years...
... There doesnt seem to have been a lot of action on the board recently. I hope you get some good advice from parents with children going through the same...
I would be grateful to get some feedback from any adults that have gone through surgery, either MMR or VRT. My son is having MMR surgery on 23rd May. We know...
Hi Lilit, I hope your son has continued to do well. Was there anything you noticed after his surgery that gave you reason to believe he was experiencing...
I am sending this question to Dr Rosenbaum as well, but I thought I would see if anyone has heard this before. We are planning to have MRR after a VRT surgery...
I just found out last year that my 5 year old daughter has type 1 Duanes. She can only turn her left eye to the right, but her other eye is fine. The doctor...
In the "files" section of the Duane's group website, there is a great brochure that can be printed to help explain Duane's to teachers, family members etc. I...
Attached is an email I sent to another mom with posts from other members that helped me before my daughter had surgery with Dr Rosenbaum....which was very...
I just found out my son has Duanes Syndrome. He is 4 months old. I have so many questions. Before I go in to any details I want to make sure I am doing this...
