As I was watching the National Spelling Bee, the word ophthalmoplegia was presented. I noticed that it was the paralysis of the eye muscle. So after doing...
What an interesting way to get to this group -- or to a diagnosis, for that matter! Welcome, Courtney! -Sari (mom of Haia, age 9, type 1 left eye) ... What...
SariScribe@...
Jun 1, 2006 6:50 pm
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Michelle wrote >>>> I know that Dr. R performs VRT surgery with (as I recall) "lateral fixation"--does anyone know whether this is his own personal version of...
My daughter was diagnosed when she was 3 months old; she is now 28 yrs old. After 5 surgeries to correct her head turn, (last one being in 1995) she finds...
... His surgeon is Dr. leonard Nelson and the telephone number is 215-928- 3244. The Hospital is at 840 Walnut Street. I really recommend Dr. Nelson. To...
Hi everyone, I wondered if anyone in the group had noticed their children sleeping with their eyes half open. My son had done this for a long time and I...
Hello everyone, I know this has been discussed before that some of you out there have, or have a child with both Duanes and some hearing loss. I'm curious...
Hi Joyce, I'am just wondering what type of surgery your son had was it VRT? And what Dr. did the proceedure? The reason I'am asking is because my daughter is...
... Wills Eye Hospital Philadelphia did the surgery. We were undecided whether to go for VRT, but decided on mrr because he did have some movement past...
Hi Joyce, My three year old daughter, Kiara, (type 1, left eye) always sleeps with her eyes half open. We are planning on asking her doctor about it during...
Hi Joyce Our daugters 1st VRT surgery was performed here in Calgary, Canada. The operation was not successful (downshoot, misaligned, and aestetically not...
... concerns. Just let me know what you would like to hear about. I have posted a lot on the board and you can put my name in a search, but anything at all I...
I've heard the same thing that hearing loss is sometimes associated with Duane's. My son has duane's type one in the right eye. He also has speech/language...
I'm pretty sure my daughter has had hearing loss from birth. They told me they had to redo her hearing test at birth because there may have been some...
My son Connor had some swallowing issues early on, so much in fact that we had a Barium Swallow Study done, which came back normal. He's very texture sensitive...
Just for information, Alex went through his second surgery, MRR with Dr Rosenbaum. He had VRT in December. We have nowgone from 30 degrees before the first to...
This is great news! I hope everything continues to work out for you. Ariel ... Dr Rosenbaum. He had VRT in December. We have nowgone from 30 degrees before...
My son Jack had severe GERD as an infant also. He suffered with it until he was about 8 months old. He doesn't have any issues with that now (he's 17 months) ...
Hi Candi Great news. We are flying out to see Dr. R. for our daughters third VRT surgery (2nd with Dr. R.) this Saturday. Her surgery is scheduled for the...
Hi Joyce, I just noticed two days ago that my son sleeps with one eye about a quarter open. It kind of makes my hart drop, but I know he'll be fine. Daniel ...
We took our dd to the ped opthamologist today and he dx'd her with Duane's. I'm sad, in shock. I thought it was just a simple lazy eye. He said there is...
... don't worry. It never seemed to cause him any harm. I always worried that he was not getting quality sleep, but was assured by a doctor that it wasnt a...
... cannot be cured, it can be helped. I don't know how old your daughter is, but my son is 21 years old and it never stopped him from doing anything. He was...
Hi Julie, By joining the group, I am sure you received some helpful literature about Duane's. My son was recently diagnosed. I too am in shock and share your...
Hi, my daughter is 3 1/2 and has Duanes, Type I, left eye and she sleeps with both eyes completely closed. However, both of my sisters, no Duanes with either, ...
jma, Thanks for your email. Did your son get teased at all as a child? Did others really notice at all? What is the VRT surgery? I hope she doesn't have double...
jma, Thanks for your email. Did your son get teased at all as a child? Did others really notice at all? What is the VRT surgery? I hope she doesn't have double...
... mentioned it and told him he was going cross eyed when he was a teenager. I wonder now whether that was around the time his eye had started to drift in....
Joyce, Thanks so much for your info. We are getting a second opinion in a month..even though it maybe the same diagnosis. My dd's eyes have great alignment...
