Hello again Renae. I am so sorry to hear about your circumstances. The HD denial from his family makes the situation far worse than it needs to be, I'm sure....
thanks so much chris i am honestly just angry because in this case even dcfs isnt listening to reason at all ! they are not backing up my niqi at all and she...
Oh girl ! the privacy laws shouldnt stop you from talking to your husbands dr. you are his wife you have all the rights to talk to his dr about anything you...
Last week I created the "Supporting The Huntington's Disease Association" Cause on Facebook and today I have entered my story into the "Facebook for Good"...
Thanks to Kath, Kayleigh, Jo, Lauren, Pam, Jen, Matt, Renny, Brian, and Sharon for their attendance. Emma.... we saw your name but you seemed to get booted......
Has anyone found a walker with front wheels useful? My mom's walking and balance are getting very bad and I just read about this type of walker on a HD...
if I make it at all as I have an appointment this evening for a minor medical procedure and don't yet know how I'll be feeling. Love and hugs to all, Sue...
Hi All, I have now got a First Giving Page to raise money for the Huntington's Disease Society of America for my efforts to do the Great Wall of China Trek. ...
In reference to the walker- depending on how bad her balance is; there is a walker that has 4 wheels, a seat & hand bakes much like a bike. This works well...
but there are still people in the room at present. Thanks to Lauren, Liz, Kath, Teresa, Matt, Ashlee, Brian, Sandy, and Dave for their attendance today. Love...
Hi What do you mean......officially finished..?? Hope it's not what I think...... Rich **************One site has it all. Your email accounts, your social...
but there are a few in there still for a short while. Thanks to Dave, Matt, Teresa, Kath, Liz, Brian, Jaq, and Lauren for their attendance today. Love and hugs...
Since I created the "Supporting The Huntington's Disease Association" cause on Facebook which now has 815 members, and my own friend's list there has grown to...
and the room is empty! Thanks to Lauren, Jeanette, Kath, Teresa, Liz, Misty, and Ashlee for their attendance today. Love and hugs to all, Sue & Kelly...
This is the email I received today from Nancy Wexler:- Dear Friends, We are pleased to announce that as of today, Xenazine* (tetrabenazine) Tablets, the first...
Sue, I for one, even though I seldom get to use chat, would be more than willing to help cover cost. EDward Cure HD ... From: Jen<mailto:jemi456@...> To:...
"E G" wrote: Sue, I for one, even though I seldom get to use chat, would be more than willing to help cover cost. EDward Cure HD Thank you for your offer to...
... From: Barbara Boyle To: kellysue14@... Sent: Monday, November 24, 2008 07:07 PM Subject: Xenazine Tablets Available in U.S. Dear HDSA members, We...
LaVonne Goodman wrote the below article that explains what HD families must do in order to get a prescription for Xenazine filled. It's an excellent article,...
Besides the HDDW article you can also read the HDSA November 24, 2008 News Release on Xenazine Tablets Availabile in the U.S. here www.hdsa.org/xenazine where...
and I look forward to chatting again on Friday. After that my availability is uncertain as I should be moving house next week if it ever gets confirmed. [/:)]...
Reminder from: huntingtonsdiseasesupportclub Yahoo! Group http://groups.yahoo.com/group/huntingtonsdiseasesupportclub/cal HD Support Club Chat Monday December...
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Dec 1, 2008 1:56 pm
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I'm afraid I won't be at the chat today as I'm still very poorly with bronchitis and recovery isn't being helped by preparations to move house next week...
Christmas Cards through Everyclick raise money for the HDA Help create the largest wall of online Christmas cards and raise funds for Huntington's Disease...
